2012 Annual Report PULMONARY FIBROSIS FOUNDATION The past year was one of amazing growth and expansion for the Foundation. We expanded our international presence by introducing new support group initiatives and by making our educational materials more readily accessible to individuals throughout the world. With new strategic partnerships, commitment to funding important research, and working to develop a Pulmonary Fibrosis Foundation Patient Registry and Care Center Network, we have continued to make a positive and lasting impact on our global community. DEAR FRIENDS,

An essential component of Last year was an exciting time for the PF helping us achieve two of our community and the Foundation and we look important goals — developing forward to continuing successes in 2013. We are effective therapies and improving developing international programs, expanding the quality of life for pulmonary our fundraising capacity, and enhancing our fibrosis patients — is the creation of a Pulmonary educational materials. Additionally, we have Fibrosis Foundation Patient Registry and Care partnered with some pharmaceutical companies Center Network. (In the Spring 2013 edition of to help fund and expand our research activities. our Breathe Bulletin we provided an in-depth The planning for the PFF Summit in December discussion of this topic.) This is something that in La Jolla is going well; we have an excellent we have seriously explored and researched and program for both health care professionals and plan to implement in early 2014. the patient community. Finally, some medica- tions that may be of benefit for PF patients are There are many benefits to a registry and working their way though the approval process a care center network. Some of these include: (clinical trials) and may become available in facilitating an early diagnosis; standardization the near future. of care; acquiring important clinical information; assessing efficacy of therapies; performing multi- In conclusion, we have grown and progressed institutional research; expediting enrollment in dramatically during our 12 years of existence. clinical trials; and enhancing support services. We still have much work to do. With all of our new programs and with the development The Cystic Fibrosis (CF) Foundation initiated of the Registry, we will need the support of their Patient Registry and Care Center Network the PF community more than ever. All of you over 30 years ago. Through the information and have been extremely generous in the past, knowledge they acquired, they were able to and I am certain that we can count on your significantly improve patient care, help develop magnanimous support in the future. effective medications, and eventually cure some patients with a specific genetic variant. Sincerely, Through these efforts the expected life span of a CF patient has increased by about 20 years. This is a true testament to the real and achiev- Daniel M. Rose, MD able benefits of a well-executed registry and CHIEF EXECUTIVE OFFICER AND care center network. CHAIRMAN OF THE BOARD OF DIRECTORS

Clearly this is a large undertaking for the Foundation, requiring significant resources both human and financial. In order for us to attain financial viability for this endeavor, we will need to acquire funding from multiple sources both public and private.

2012 ANNUAL REPORT 1 TO OUR COMMUNITY,

The diagnosis of any life-threatening For patients and caregivers who were unable to illness is difficult, presenting new attend support groups in person, we were pleased decisions and challenges. For to have partnered with the InspireSM online patients diagnosed with pulmonary support group community. Inspire only partners fibrosis (PF), they must also learn with the most respected patient advocacy organi- about a disease they probably have never heard zations and provides secure and moderated online of, its symptoms, and potential treatments. But support groups. Patients and caregivers connect they are not alone. They enter a large community by creating personal profiles, participating in of support that provides assistance on many levels discussions, and blogging. and connects people who face similar experiences. The Foundation also continued our Leanne At the Pulmonary Fibrosis Foundation (PFF), Storch Support Group Fund, initiated in 2011, support for patients, their families, and their and named for the PFF’s former Executive caregivers is one of the four pillars of our mission. Director who was diagnosed with pulmonary Support groups provide a warm, non-judgmental fibrosis in 2003. Groups apply for annual awards environment where members receive emotional that can be used towards meeting programming, support and practical information. Often joined educational materials, or location requirements. by medical practitioners and representatives The Foundation offers support to many people of support services, people share personal in many different forms. Support may be experiences, learn coping strategies, and receive one-on-one, in a group setting, or an online answers to their questions. community. You’ll find it across many locations We’re pleased that 2012 saw the introduction and languages. But regardless of where it is or of new support initiatives, along with the the format it takes, the benefit to PF patients continuation of our ongoing programs for the and those who care about them is unparalleled. PF community. Foremost was our commitment The Foundation’s dedication to finding new to the international community by expanding avenues of support for those in need and our Support Group Network to the European continued expansion of our current resources Union (EU). In September 2012, the Foundation is unwavering. We invite you to learn more hosted a Support Group Leader Workshop about the work we are doing and join us. in Modena, Italy, just prior to the start of the Sincerely, International Colloquium on Lung and Airway Fibrosis (ICLAF). Joined by representatives from all over Europe, our goal was to better engage Patti Tuomey, EdD European patients and family members, along PRESIDENT AND CHIEF OPERATING OFFICER with the distribution of our Support Group Leader Guide, translated into six languages.

2 PULMONARY FIBROSIS FOUNDATION ABOUT THE DISEASE

WHAT IS PULMONARY FIBROSIS WHAT DOES THE DISEASE AND WHAT ARE THE CAUSES? LOOK LIKE?

Pulmonary fibrosis (PF) describes a condition IPF affects between 132,000 and 200,000 indi- in which the lung tissue becomes thickened, viduals in the United States with an estimated stiff, and scarred.1 The medical terminology used annual mortality of 40,000. In the European Union, to describe this scar tissue is fibrosis. The alveoli IPF affects between 37,000 and 40,000 people. (air sacs) and the blood vessels within the lungs In the United Kingdom alone, more than 5,000 are responsible for delivering oxygen to the body. new cases of IPF are diagnosed each year. As a All of the body’s functions depend upon delivery result of the difficulty in making a diagnosis and of an adequate supply of oxygen. As lung tissue lack of a patient registry, the accrual of accurate becomes scarred and thicker, it is more difficult data has been problematic. For these reasons, for the lungs to transfer oxygen into the blood- it has also been difficult to obtain adequate data stream. As a result, the brain, heart, and other regarding the incidence of those affected by organs do not get the oxygen they need to pulmonary fibrosis from all causes. IPF has no function properly.1 strong demographic profile although it appears to affect more men than women. PF can strike at Pulmonary fibrosis can result from a number any age, but usually occurs between the ages of causes: certain environmental agents (dust, of 50 and 70. The median survival is just two to silica), medications (antibiotics, antiarrhythmics), three years following diagnosis and more than radiation, autoimmune diseases (scleroderma, two-thirds of patients will die within five years. rheumatoid arthritis), or a genetic predisposition. However, in most situations the etiology (cause) Symptoms of pulmonary fibrosis include: is unknown. If there is no known cause, and shortness of breath (dyspnea), chronic cough, specific radiographic or pathologic criteria are fatigue and weakness, discomfort in the chest, met, the disease is called idiopathic pulmonary loss of appetite, and weight loss. fibrosis (IPF). Treatment includes supplemental oxygen, There are more than 200 related diseases that pulmonary rehabilitation, medications to manage affect the lung with inflammation and scarring, symptoms, maintaining a healthy lifestyle these are known as interstitial lung diseases (optimizing weight and exercise), and lung (ILD). Idiopathic pulmonary fibrosis is the most transplantation for those who qualify. serious and common form of ILD. IPF is a progres- Pulmonary fibrosis is a devastating disease. sive, fatal lung disease, for which there is no It is our goal to help find effective treatments and known cause or cure. There is no FDA-approved ultimately a cure. Until that time we aspire to treatment for IPF in the United States; pirfenidone increase disease awareness; provide educational (Esbriet,® Pirespa,® Pirfenex® ) is approved for materials and events for patients and health care treatment of mild-to-moderate IPF in the professionals; advocate for the PF community; European Union, Canada, and Asia. and offer support to patients, family members, and caregivers.

1. National Heart Lung and Blood Institute. “What is idiopathic pulmonary fibrosis? Available at www.nhlbi.nih.gov/health/health-topics/topics/ipf. Accessed June 29, 2012. 2012 ANNUAL REPORT 3 One of the important initiatives of the Pulmonary Fibrosis Foundation is to improve patients’ and caregivers’ access to support groups. With limited options for treatment and no cure for pulmonary fibrosis, support groups provide the crucial information and emotional support that patients and caregivers need in order to improve their lives. SUPPORTING PATIENTS AND CAREGIVERS

INTERNATIONAL SUPPORT GROUP INITIATIVE

In the United States, people affected by pulmo- the International Colloquium on Lung and nary fibrosis (PF) have received tremendous Airway Fibrosis (ICLAF). Representatives from benefits from attending support groups where over 90 EU interstitial lung disease centers patients and caregivers regularly gather to and 12 patient advocacy groups were invited discuss how PF affects their lives. Often joined to attend the event. The goal of the Workshop by medical professionals and other health care was to develop new relationships with the providers, participants learn about the disease, European PF community and to learn how to available treatments, and how to improve better engage European patients and family their quality of life. members. The agenda included presentations and discussions on support group guidance, Recognizing the value of these groups, the best practice models, and relevant cultural Pulmonary Fibrosis Foundation (PFF) made and geographic issues. Key to the success a commitment in 2012 to expand our Support of the Workshop was the distribution of the Group Network into the European Union (EU). Foundation’s Support Group Leader Guide, Funded by Boehringer Ingelheim, InterMune, which had been translated into six languages. and the Culliton-Metzger Family, we held our first international “Support Group Leader Support groups have proven to be a valuable Workshop” in the EU. benefit for PF patients and caregivers. The Foundation’s international Workshop helped In partnership with Luca Richeldi, MD, PhD, bring this important resource to the global PFF Medical Advisory Board Member and Director PF community. and Founder of the Center for Rare Lung Diseases at the University of Modena and Reggio Emilia, the Workshop was held in Modena, Italy, on September 29, 2012, just prior to the start of

4 PULMONARY FIBROSIS FOUNDATION Kathleen O. Lindell, PhD, RN and Luca Richeldi, MD, PhD, (above) at the Support Group Leader Workshop where physicians attended presentations on support group guidance (right). Patients participating in support groups (above).

INSPIRING SUPPORT

In the Spring of 2012, the Pulmonary Fibrosis Dolly Kervitsky, RCP, CCRC, the Foundation’s Vice Foundation proudly partnered with the InspireSM President of Patient Relations and Medical Affairs, online support group community. Inspire provides views the partnership as a lasting investment with secure and moderated online support groups a far-reaching purpose: “Through well-run support that allow patients and caregivers to connect groups, both online and in person, the knowledge by creating personal profiles, participating in gained by the participants helps empower them discussions, and blogging. Members may also to become their own advocates and will also allow access relevant health and wellness forums and them to educate others.” also obtain information about participation in For more information, visit www.inspire.com/ clinical trials. Inspire partners with only the partners/pulmonary-fibrosis-foundation. most respected patient advocacy organizations and currently has over 300,000 members.

2012 ANNUAL REPORT 5 Pulmonary fibrosis impacts the lives of individuals throughout the world. The Foundation’s goal to increase international disease awareness is important

to improving their future. In 2012, we maximized the impact of educational initiatives in Europe and the United States by making them available to audiences CONNECTING everywhere via webcasts. THE GLOBAL COMMUNITY

GLOBAL PULMONARY FIBROSIS AWARENESS DAY

The Foundation continuously pursues opportunities to expand awareness of pulmonary fibrosis (PF). The potential benefits of increased disease aware- ness are clear and can lead to earlier diagnosis, improved standards of care, and increased support from government agencies. Expanding awareness can also stimulate support for new research, resulting in new and better treatments.

In 2012, the Foundation took a major step toward increasing disease awareness by conducting the first Global Pulmonary Fibrosis Awareness Day. Funded by Boehringer Ingelheim, InterMune, and the Culliton-Metzger Family, the day was part of a month-long awareness initiative. Held on September 29, Global Pulmonary Fibrosis Awareness Day featured two separate webcasts titled “Living Better with Pulmonary Fibrosis.” The educational events were conducted and webcast from the University of Modena and Reggio Emilia in Modena, Italy, and from National Jewish Health in Denver, Colorado. Topics discussed during the webcast included “What is Pulmonary Fibrosis?” along with “The Role of Support Groups”

6 PULMONARY FIBROSIS FOUNDATION MAB UPDATE

and “Tools for Living Better with Pulmonary Medical Advisory Board (MAB) Fibrosis.” Patients, caregivers, and family members Welcomes New Members were able to view the webcasts at home as well The Foundation is pleased to announce the addition as in groups facilitated by medical professionals of two new members of the international community at interstitial lung disease centers in Europe and to our Medical Advisory Board. Dr. Luca Richeldi from the United States. Attendees and viewers were also Modena, Italy, and Dr. Andreas Günther from Geissen, provided with the opportunity to ask questions Germany — both highly respected investigators — either in person or online. bring valuable international perspective to the MAB.

Central to the success of any global initiative is accessibility to materials in multiple languages. The Modena webcast was translated live into six languages. Additionally, translated copies of the Pulmonary Fibrosis Patient Information Guide and Support Group Leader Guide (see International Support Group Initiative, page 4) were available.

2012 ANNUAL REPORT 7 Special events create unique opportunities to raise funds to support research and programs. These events also foster

relationships and promote awareness of the disease. In 2012,

the Foundation involved members of the PF community

both in the US and abroad through the Breathe Benefit annual

dinner and Team PFF. EXTENDING BENEFITS OF SPECIAL EVENTS

BREATHE BENEFIT 2012: COMMUNITY INSPIRING A CURE

Last year, the Foundation extended an invitation to anyone in the world who was unable to attend the Breathe Benefit in Chicago to participate by hosting a satellite “Global Dinner.” The concept was introduced to foster a greater sense of unity among members of the pulmonary fibrosis (PF) community.

Held concurrently with the Breathe Benefit Chicago Dinner, over 20 Global Dinners were hosted and attended by over 200 guests and took place in locations as diverse as Mobile, Alabama,

Kathy Petrak, a dedicated pulmonary fibrosis and Oslo, Sweden. advocate, and Chuck Lawless, Senior Managing Director and Head of Lawless Advisory Group Guests at the Chicago Dinner included patients, at Mesirow Financial, co-chaired caregivers, family members, medical professionals, the Chicago Dinner. and other valued supporters of the Foundation. Mary Ann Ahern, from Chicago’s NBC5 News, emceed the evening. She and her husband, Tom Ahern, also served as honorary chairs. Special guests were Broadway actress, Julie Halston, and her husband, broadcaster, Ralph Howard.

8 PULMONARY FIBROSIS FOUNDATION Foundation co-founder, I.M. Rosenzweig, PhD. The Young Investigator Awards were re-named in his honor. The Young Investigator Awards were presented by Kevin K. Brown, MD, Chairman of the PFF’s Medical Advisory Board, and a member of PFF’s Board of Directors.

Foundation co-founder, I.M. Rosenzweig, PhD, who lost his courageous battle with idiopathic Former Executive Director of the Foundation, pulmonary fibrosis (IPF) in June 2012, was Leanne Storch and husband, Mike. During the awards presentation, the Foundation announced honored with a photographic tribute as well the six recipients of the 2012 Leanne Storch as some warm remembrances delivered by his Support Group Fund. Mrs. Storch was diagnosed daughter, Dr. Karen Schwartz. Dr. Rosenzweig with PF in 2003 and the Fund honors her deep passion for supporting those affected by and his brother, Albert Rose, started the the disease. foundation in 2000. Both of them had been diagnosed with IPF, and they had previously lost their sister to the disease. Dr. Rosenzweig led the Foundation until he retired in 2009 due to the progression of his illness. In recognition of Dr. Rosenzweig’s dedication to research, the Young Investigator Awards were renamed in his honor.

In total, the Breathe Benefit Chicago Dinner and Global Dinners raised over $175,000. These funds will help support important research and many of the Foundation’s patient activities.

2012 ANNUAL REPORT 9 Like many family members and friends of patients whose lives have been suddenly changed by pulmonary fibrosis, Broadway actress and comedienne, Julie Halston, was shocked when two significant people in her life were diagnosed with the disease. As the host of what has become one of our signature events, Ms. Halston has made the Foundation’s mission her REACHING FOR own — to spread awareness about pulmonary fibrosis THE STARS and support research.

SECOND ANNUAL BROADWAY BELTS FOR PFF!

On February 27, 2012, some of Broadway’s best performers gathered at New York City’s famed Birdland Jazz Club to honor the memory of Associated Press theater critic and reporter, Michael Kuchwara, who passed away from complications due to pulmonary fibrosis (PF) in 2010.

Broadway Belts for PFF! was first held in 2011 when Ms. Halston and a group of friends decided to remember Mr. Kuchwara with an evening of his favorite Broadway tunes. Earlier the same year, Julie Halston with the evening’s surprise Ms. Halston’s husband, Howard 100 News broad- guest, the famed Joel Grey (Anything Goes). caster Ralph Howard, had a lung transplant for Mr. Grey performed an impromptu rendition of “Wilkommen” from his Tony Award and PF, adding even greater meaning to the event. Oscar Award winning role in Cabaret. Sirius Satellite Radio’s Seth Rudetsky opened the event with an amusing monologue about “belting.” Broadway stars then showcased their talents under the musical direction of Jesse Kissel and returning director Carl Andress. The all-star cast included: Tony nominees Adam Pascal (Memphis) and Andrew Rannells (The Book of Mormon), Robert Creighton (Anything Goes), Lindsay

10 PULMONARY FIBROSIS FOUNDATION Theater critic, Adam Feldman, gave a heartfelt tribute to friend and colleague, Michael Kuchwara.

The entire cast took the stage to sing “Da Doo Ron Ron” for the evening’s finale. PHOTOS CHRIS BY OWYOUNG

Pop icon and Broadway regular, Darlene Love, delighted the audience with “Today I Met the Man I’m Going to Marry.”

Mendez (Godspell), Betsy Wolfe (Encores! Merrily We Roll Along), Heidi Blickenstaff ( Now. Here. This., [title of show]), and Julia Murney (Queen of the Mist, Wicked).

The event raised over $50,000. All proceeds went toward the Foundation’s Michael Kuchwara Fund for Idiopathic Pulmonary Fibrosis Research, Education, and Advocacy.

The Foundation sincerely thanks Julie Halston, Ralph Howard, D. Michael Dvorchak, Ed Windels, Sue Frost, and Charlie Siedenburg for their profound dedication and generous contributions to the PF community.

2012 ANNUAL REPORT 11 I.M. Rosenzweig, PhD, one of the co-founders of the Pulmonary Fibrosis Foundation who lost his battle with idiopathic pulmonary fibrosis in 2012, believed strongly in the importance of funding research. The Foundation carries on his legacy by strategically funding innovative research and establish- EXPANDING ing important partnerships. RESEARCH BOUNDARIES

FUNDING RESEARCH FOR SUCCESSFUL THERAPIES

An important part of the Pulmonary Fibrosis Through this “seed” grant, Dr. Tager was able to Foundation’s goal to fund research that will identify a potential target (the LPA pathway) that is ultimately lead to the development of successful key in the development of lung fibrosis. As a result therapies for pulmonary fibrosis (PF), is to of this initial research, Dr. Tager secured a larger support early phase research that is often grant from the National Institutes of Health to underfunded. One successful example of this continue this research. approach is demonstrated by the development Dr. Tager subsequently partnered with a small of a lysophosphatidic acid (LPA) antagonist. biotech company, Amira Pharmaceuticals, which A few years ago the Foundation provided helped develop an LPA antagonist (a drug called a research grant to Andrew Tager, MD, AM152) to block this pathway. This compound was of Massachusetts General Hospital. shown to inhibit the development of lung fibrosis in an experimental model. In a Phase 1 trial the drug was shown to be safe in humans. Bristol Myers Squibb subsequently purchased Amira and is now recruiting for a Phase 2 trial.

The Foundation has funded numerous other early stage projects, which we are hopeful will eventually lead to successful therapies. For a complete list, please visit www.pulmonaryfibrosis.org/research.

Andrew Tager, MD

12 PULMONARY FIBROSIS FOUNDATION EXPANDING THE UNDERSTANDING OF FIBROSIS

Along with top scientists from around the world, Organizers of the Symposium are currently the Pulmonary Fibrosis Foundation (PFF) partici- in the process of developing a “Fibrosis Roadmap” pated in the “Fibrosis Across Organs Symposium.” for multidisciplinary and inter-institutional The conference, held on March 11–12, 2012, in investigations that will soon be published. Denver, discussed fibrotic diseases that exist in different organs including the lung, liver, kidney, ICLAF heart, and skin. Advancing the understanding of fibrotic disease in these organs may ultimately Leading the Way for Advocacy at lead to better treatments for fibrotic diseases the International Colloquium on Lung of the lung. and Airway Fibrosis

The American Thoracic Society (ATS) sponsored The Pulmonary Fibrosis Foundation (PFF) was the Symposium. Organizers included Kevin K. honored to be a partner, as well as the first advocacy Brown, MD, Chairman of the PFF Medical Advisory organization invited to present, at the International

Board; Gregory P. Cosgrove, MD, PFF Medical Colloquium on Lung and Airway Fibrosis (ICLAF) that Advisory Board Member; and Dolly Kervitsky, took place in Modena, Italy. RCP, CCRC, Vice President of Patient Relations The 17th biennial conference was organized by the and Medical Affairs for the PFF. Center for Rare Lung Diseases at the University of The goal of the conference was to take a multidis- Modena and Reggio Emilia and was attended by over ciplinary approach to defining scientific priorities 250 leading investigators in lung fibrosis. for future research, assess the relevance of Daniel M. Rose, MD, Chief Executive Officer and currently available experimental models, and Chairman of the Board of Directors of the PFF, gave to identify potential therapies. a presentation on “The New Paradigm of Patient Advocacy Organizations.”

2012 ANNUAL REPORT 13 The creation of a Pulmonary Fibrosis Foundation Patient Registry and Care Center Network is essential for assessing effective therapies and improving patient

care. In 2012, we began establishing partnerships with clinicians, researchers, government agencies, and biopharmaceutical organizations to make a Patient Registry and Care Center Network RAISING THE BAR a reality. FOR HIGHER STANDARDS

PLANNING THE OF CARE PFF PATIENT REGISTRY AND CARE CENTER NETWORK

The most common form of pulmonary fibrosis As an important adjunct to a Registry, (PF), idiopathic pulmonary fibrosis (IPF), the Foundation also began plans to create affects between 132,000 and 200,00 people in a Care Center Network that will afford the US.1 As such, many institutions do not have a standardized and comprehensive, multi- a sufficient number of patients to conduct disciplinary approach to patient care. This meaningful clinical research. integrative method of treatment is crucial to providing quality patient care. Developing a pulmonary fibrosis patient registry would make standardized data available to all The PFF Patient Registry and Care Center clinicians and researchers. This information Network initiative will provide data that is would include demographic data, patient history necessary to improve and extend the lives and physical findings, drug therapies utilized, of patients with PF. high-resolution computed tomography (HRCT) findings, laboratory data, and results from other diagnostic procedures. This information can be extremely helpful in the development of new and effective treatments. With a Pulmonary Fibrosis Foundation Patient Registry and Care Center Network there is the potential to acquire significant funding from the National Institutes of Health and industry for collaborative studies that will facilitate much needed research of the disease. 1. Raghu G, Weycker D, Edelsberg J, Bradford WZ, Oster G. “Incidence and prevalence of idiopathic pulmonary fibrosis.” Am J Respir Crit Care Med 2006;174:810–816.

14 PULMONARY FIBROSIS FOUNDATION PFF RESEARCH The Pulmonary Fibrosis Foundation places enormous importance on funding new PROGRAM research, developing solutions to bridge existing gaps in pulmonary fibrosis research, and encouraging collaborative relations between industry and academic researchers that will ultimately lead to successful therapies for pulmonary fibrosis.

2012 PFF Research Fund Awards

GENERAL RESEARCH GRANTS ATS/PFF/CPF YOUNG INVESTIGATOR

• Dr. Erica Herzog of Yale University – “Prospective Evaluation of PARTNERSHIP GRANTS

IPF Biomarkers” (Year 2) • Dr. Jia Guo of University of Rochester –

• Dr. Aldo T. Iacono of University of Maryland – “Open Label Use “Fibrocyte Differentiation is Regulated by Yin Yang 1 of Inhaled Cyclosporine in Lung Transplant Recipients” (Year 3) in Pulmonary Fibrosis” (Year 2)

• Dr. Daniel J. Kass and Dr. Naftali Kaminski of University of Pittsburgh – • Dr. Yan Sanders of University of Alabama at “Targeting the Relaxin Pathway in Pulmonary Fibrosis” (Year 2) Birmingham – “Epigenetic Regulation of Caveolin-1

• Dr. David J. Lederer of Columbia University – “Subclinical Interstitial by TGF-beta Mediated Signal Pathway in Lung

Lung Disease in MESA: The MESA Lung Fibrosis Study” Fibroblasts” (Year 2)

• Dr. Imre Noth of University of Chicago – “miRNA Expression in 2012 Partnerships Patients with Rapidly Progressive IPF Versus Stable IPF” (Year 2) • 17th International Colloquium on Lung and Airway • Dr. Patricia J. Sime of University of Rochester – “Translational Studies Fibrosis (ICLAF) of New Therapeutic Targets & Biomarkers in PF” (Year 2) FUNDED IN PART

BY THE GREG CHANDLER AND GUY F. SOLIMANO MEMORIAL GOLF TOURNAMENT 2012 Sponsorships • Dr. Andrew Tager of Massachusetts General Hospital – “Profibrotic • American Thoracic Society – Fibrosis Across Organ Mechanisms of the LPA Pathway” (Year 1) FUNDED IN PART BY THE TIGHE Systems Symposium FAMILY TRUST AND THE ROUINE RUN, INC. • National Jewish Health – Familial Pulmonary Fibrosis I.M. ROSENZWEIG YOUNG INVESTIGATOR AWARDS Genetic Counseling Program • Dr. Haitao (Mark) Ji of University of Utah – “Design and • Pittsburgh International Lung Conference Synthesis of Selective Beta-catenin/T-Cell Factor Inhibitors for • University of California, San Francisco – “Update in the Treatment of Idiopathic Pulmonary Fibrosis” (Year 1) Interstitial Lung Disease: Diagnosis and Management”

FUNDED BY A GRANT FROM INTERMUNE, INC. CME Course • Dr. Rebecca Keith of University of Colorado, Denver – “Therapeutic • University of Maryland – Hales Lung Conference Targeting of PTPN-13 in Idiopathic Pulmonary Fibrosis” (Year 1) • University of Minnesota – Annual PF Educational ALBERT ROSE ESTABLISHED INVESTIGATOR AWARDS Symposium

• Dr. James S. Hagood of University of California, San Diego – • Yale University – Sixth Annual Yale Fibrosis Symposium “Extracellular Vesicles Alter Cell Phenotype in Pulmonary Fibrosis” (Year 1)

• Dr. Glenn D. Rosen of Stanford University – “Analysis of Novel

Functions of Human Telomerase RNA in IPF” (Year 1) PFF RESEARCH FUND

ATS/ PFF INTERNATIONAL PARTNERSHIP GRANTS Young Investigator and • Dr. Anthony Shum of University of California, San Francisco – Established Investigator Awards “Defining the Molecular Basis of Interstitial Lung Disease To learn more, visit www.pulmonaryfibrosis.org/ in Rheumatoid Arthritis” (Year 1) research/PFFgrants. • Dr. Anne Holland of La Trobe University, Australia – “Where Does Pulmonary Rehabilitation Fit in the Management of Pulmonary Fibrosis?” (Year 2)

2012 ANNUAL REPORT 15 2012 SUPPORTERS

$100,000+ Boehringer Ingelheim The Cowlin Family Fund Tom & Alice Hales InterMune, Inc. Charles & Monica McQuaid THANK YOU Steve & Joan Wald $10,000–$99,999 Ritu S. Baral Darell & Bonnie Bentz TO ALL OUR Cheryl A. and John M. O’Meara Charitable Foundation GE Foundation Matching Gifts Program H & A Trust DONORS Mike & Donna Henderson Henry M. Staley Charitable Trust Jay Adams Estate Jenny H. & Otto F. Krauss Charitable Foundation Trust JPMorgan Chase Doug and Gay Lane Charitable Foundation Michael P. Savoca Memorial Foundation Doris Reynolds-Johnson Daniel M. Rose, MD RS Family Trust, DTD SCDF Family Partnership, LLLP Culliton-Metzger Family Gunterberg Foundation

TEAM PFF $5,000–$9,999 George Bergna Angelina Caldwell Over the years, the Foundation has benefited from Broadway Cares/Equity Fights Aids the efforts of the many volunteers who have dedicated Jeffrey & Pam Choney their seemingly endless energy to help support the Phyllis N. Demont First Protocol mission of the Pulmonary Fibrosis Foundation. These Mark Fuller & Family dedicated individuals have organized many diverse Suzanne Gylfe & Family fundraising events. In 2012, the Foundation launched Maxine Kent Callinan Michael & Linda Keston Team PFF to provide them with the guidance and tools Pete DeVito Memorial Foundation, Inc. they need to host successful events, and to create Carl & Teresa Salzano a stronger network of advocates. Alan & Pam Schwed The Baupost Group, LLC The Foundation wishes to thank Team PFF members The Winfield Foundation Willett Foundation, Inc. for their generous support. You will find their names Jeffrey Williams throughout these donor recognition pages. Read Rufus & Sheila Williams more about two Team PFF members who are making a difference on pages 37 and 38.

To learn more about Team PFF and how to host your own event, visit www.pulmonaryfibrosis.org/teampff.

16 PULMONARY FIBROSIS FOUNDATION $2,500–$4,999 $1,000–$2,499 Helen Jane Hamilton American Recycling & Manufacturing Robert Abrams Sally Hansen Co., Inc. Ann Ahern Emil Harasym III Karen Brevig Alamance Force Volleyball Club Hard Eight BBQ Steve Brubakken Larry & Barbara Alexander Curran Harvey, Jr. Tom & Theresa Buchanan Sandy Alford Wiley & Irene Harwood Campbell Scientific, Inc. Anna M. & James L. Kirk Foundation, Inc. Carla Helaszek Daryl & Steven Roth Foundation Baker Hughes Foundation Holson Family Foundation Kevin Dooley Karen Barnes Chase Hutt Frank Brunckhorst Co., LLC Sandra Bean Lewis IBM Employee Services Center Jennifer A. Galvin, MD Paul & Susan Bergna JW Swanson & Associates, LLC Robert & Marybeth Haynes Stephen Blacker Herbert Janick, PhD Steve & Bev Hossa Dianne Bowman Jerry and Linda Strickland Family Foundation John & Dolores Kent Margery Brittain Joe Escobar Diamonds, Inc. Jeff Kettwig Laura Brownson John Johnson Sandra Kully Arlene Bush William Joyner III Lawless Advisory Group at Thomas & June Butkovich Larry Klein Mesirow Financial CA Technologies Brian Knott Marie Lynch Richard Cabela James & Celeste Kramer Margo Lion, Ltd. Ed Capen & Family Fred & Virginia Krauss Bridget McMahon Healy & Family CCI Evadna Kronquist Arlyce Melheim Chicago Area Combined Federal Campaign Amaya Lambert Jeanna Moritz Jo Carol Clark Floyd Landis The Nederlander Organization Sandra Cohn & Family Tim Lee, Sr. North Gratiot Veterinary Hospital Cliff Cort Warren & Denise Loveland Dan & Julie Willis O’Connor Bernard Costello Edward & Sharon Luikaart Vania & Barbara O’Connor Cotter Realty Trust Jeanne Lukasik Panoplos Advisory Group at Custom Gear and Machine, Inc. Beth Lyness Mesirow Financial John DeMichaelis Larry & Shannon Lynn Hiren & Patti Patel Deutsche Bank Americas Foundation Martin Family Foundation Kathy & Chris Petrak Matching Gifts Program Mayo Clinic Petrak Industries, Inc. Gina Dibella Carol McCallum Roy Fuhr Charity Fund Ronald Dolon, MSW, EdD, ACSW Gary & Kim McCullough John Ryan Ronda Dorchester Mcginty, Inc. d/b/a Advantage Wilhelmina Savoca Michael Dorf Instrumentation and Electrical Sue Stites Robert East Judy McLaughlin Team Mossman, Inc. Embrace Home Loans, Inc. Deborah McWhinney The Brock Foundation Estate of Vera Sunday Microsoft Matching Gift Program The Hart Family Foundation Dan & Teresa Evered Moglia Family Foundation Lisa Tighe Jonathan Farber Stephen Monas Gerda Tighe Jerry Farrow Monroe Wheelchair John Tighe II A. J. Fechter, CPA Bobbi Newman Patricia Townsend Michael Ferry Pat Olson Patti Tuomey & Chris Martin Foley Foundation, Inc. Orange Runners Club UW Health, Lung Transplant – Judith Friedman & Julia Friedman Laura Palagyi & Family Advanced Lung Disease Program Michael Gard Thomas Panaggio Herbert Gedge Nayankishor Pandya Gersowitz, Libo & Korek, P.C. Phillips-Van Heusen Foundation, Inc. Brian & Jennifer Goehl Mark Plourde Genevieve Grayeski Avi & Joan Porat Tina Guevarra Debbie Purcell Vikash Gulati Vivienne Wilson Haines

2012 ANNUAL REPORT 17 2012 SUPPORTERS

$1,000–$2,499 (continued) $500–$999 Ed Clark Fred P. Ritchie Mike & Cathy Ahern Clemons Builders Lili Roche Thomas & Mary Ann Ahern Marci & Jessica Cohen Mauricio Rodriguez Air Products Equipment Company Charlie & Doris Cohen Richard V. Romano, DDS Allstate Giving Campaign Francis Coleman Lawrence Rosenzweig Ameriprise Financial Employee Matching Karen Cooke Richard Rothberg Gift Program Alan Cravitz Tim Sabean Anthony E. Blumberg & Associates, LLC CRW Parts, Inc. Ann Schmidt Shirley Arseneau John & Wendy Cubbon Thomas Schumacher Celeste Bancroft Chad Deaton Romalda Schwed Bank of America Charitable Foundation Richard Dery Sheffield Metals International Ruth Banks Vinay Desai Ray Shelmire Bay Area Medical Center John & Lynn Dimenna Shorr Packaging Corp. Bay State Federal Savings Charitable Carlinda Dirks Bernald Smith Foundation Dobbins Communications, Inc. Cecilia Smith, MD Thomas & Rosa Bennett Phil Dodson Fil Spizzirro Ross Berbeco Anne Donahoe Robert St. Germain Daniel Beren, Esq. David & Kim Dorste Robert & Amy Starling Monique G. Bergeron Thelma Douglas Texas Rare Earth Resources Corp. Donald Bickel Marsha East The Jane Blair Project Michael & Eryn Bingle Emmanuel Lutheran Church The Summit Federal Credit Union Cindy Bobendrier Bill Englebrecht Tighe Warehousing and Distribution, Inc. Jagadish Boggavarapu Estate of Robert A. Levy Hitesh & Sima Trivedi Robert Bongiardino Amy Everman Kevin & Linda Tucker Nancy Borchardt Darrel Everman Twelve Oaks Senior Living Lisa Boyd James Fendt University of Rochester Pat Brackley Alicia Fickett Unum Group David Brining Deborah Figueroa Carolyn Vanderberg Rose Broderick Teresa Flores Tanuja Vedere David Brown FM Global Foundation Bobbi Walsh Kevin K. Brown, MD Foothills Hockey Association Wb-Br Kiwanis Foundation Shelby & Lacey Bufkin Foundation for Art Research and Wells Fargo Bank Marc & Jennifer Bulandr Education, Inc. Charles & Karen Westphal Dave & Lisa Burke Thomas & Jeannine Frank Roger Wilander Timothy Bush Christina Friday Willacker Action Committee Marggie Buss Richard & Ann Marie Geary Gloria Jean Wilson BV Investment Partners Give With Liberty Jonathan & Whitney Witt Byron Union Oil Company Werner & June Goering Woodlawn Run For A Cause Percy Calkins David Goltermann Victoria Woolf Casella Waste Systems, Inc. Bill & Jan Gooden Richard Zegarra, MD Charlotte Caudill Catherine Goodrum Eileen Zilvetti Rosemary Cauley Don Goodwin James & Amy Chandler Tony Griggs Carter Chinnis

CREATE A TRIBUTE PAGE

Donating in honor of those fighting pulmonary fibrosis, or in memory of those who have passed, is a thoughtful and significant way to show support. Create a Tribute Page to honor a loved one today. Learn more at www.pulmonaryfibrosis.org/createtribute.

18 PULMONARY FIBROSIS FOUNDATION Nancy Guse Robert Mann Cheryl Runyon Daniel & Megan Hack Jeff & Sandy Martin Family South Carolina Hospital Association Hap Minni Marwaha Naida Schoenthal Anita Hart Anita Marx Schreibers David Herder James McAdams Mark & Diane Schwed Sharolyn Hirata Ken & Jeanne McAtamney Seacor Holdings Geraldine Hogan Caroline McCullen Susan Searls Holland United Methodist McKesson Foundation Seashore Surgical Institute, LLC John Hunt IV Matching Gift Program Margaret Severson Illinois Tool Works Foundation Joan McKinnish Shatz, Schwartz, and Fentin, PC Innovative Benefit Consultants, Inc. John McMichael Charitable Foundation Jennifer Marie Jardine Ginger McMullen Bruce Sloane Richard & Sharon Jenkins David Meyer Marilyn Smith Dougal Jeppe Richard Meyers So Hum Foundation Johanna Foods, Inc. Edward & Carole Miller Bill Sorenson David Johnson Minglewood Associates, Inc. Steiker, Fischer, Edwards Doug & Carolyn Jones Jason Montano & Greenapple, P.C. Alex & Sharon Karlin Jennifer Morgan Gordon Stewart Mary Kirby Brian Mozhdehi Rick Stockfield James Knoble National Auto Care Corp. Nathan Swingley & Amanda Swingley, DO Norm Kocol National Small Business Association Andrew Tager, MD Kohl’s Steve Ness Francine Ter Weele Dolores Koppisch Diane Nielson Terrier Claims Services Dennis Koscicki Norm Foote, Inc. The Herman and Jerry Finkelstein Steven Kraemer Novellus Systems, Inc. Foundation Gerald Krantz Reeva Nowitz The Janet and Tony Goldman Andre Kreil Mandi Ohlinger Take A. Risk Foundation Doris Kroll OrePac The Zeller Corporation Foundation Jonnie Kuchwara Linda Osterman Jeannie Trautman LG Display America, Inc. Jeffrey O’Sullivan United Way of Allegheny County John Lambert Bert & Susan Oyama Unum David & Sandee Landsburg Jill Parham James Verdier Eric Lanzendorf Matthew Patterson Henry Wainwright Mary Larson Kenny Peacook Walker Family Lattice Technology Group, Inc. Deana Peterson Walnut Creek Hardware Chuck & Jennifer Lawless Rick Pianelli Moira Warren Paul & Virginia Lawless Tom & Donna Poehls Paige Watson Tracy & Anne-Marie Lee Jim Chaplin & Judith Poindexter James Watt Paul & Emily Lewis Seema Prasad Weaver Lincare, Inc. William Price, MD & Linda Price Pamela Weiss Gretchen Lindner Quality Bakeries, LLC Matthew & Erica Williams Bob & Joan Lipsig Alan & Lori Rash Kurt Williams Paula Litscher James & June Reed Virginia Williams Sylvia Lock Kay Reese Jennifer Wilson Kyle Lublin RGL Consultants Marie Wilson Don Luken Richard G. Hill Family Trust Michael Wilson Jennifer Lydigsen Eric Risinger Robert Witt Barbara Lynn Enrique Rivera Donna Woods CREATE A TRIBUTE PAGE James Mahoney, Jr. & Sarah Mahoney Robert Wood Johnson Foundation Don & Melanee Yielding Gary Malasky Jon Robinson D. J. Dammann & Mike Zinsmeister Donating in honor of those fighting pulmonary fibrosis, or in memory of those who have passed, John & Katherine Mancini Gary Rogner Lynne Zizlavsky is a thoughtful and significant way to show support. Create a Tribute Page to honor a loved one today. Franklin Rose, MD Patricia Rosol Learn more at www.pulmonaryfibrosis.org/createtribute.

2012 ANNUAL REPORT 19 2012 SUPPORTERS

$250–$499 Beth Cecka First NBC Bank Adirondack Hardware Company, Inc. Kristine Chapman Eileen Flock Adirondack Pulmonary & Sleep Chevron Humankind Foundation Clifton Forlines Medicine, PLLC Matching Gifts Program Dena Frank Advanced Occupational Medicine Chicago Tube and Iron, Co. Hugh Franklin Specialists Victoria Chipps Christian Frueh Patrick & Katy Ahern William & Roseann Chiulli G&W Manufacturing, Inc. Jack & Stephanie Alexander Chromium Industries, Inc. The Galassi Family Fund Mark & Lori Anderson Raymond Ciccarelli Andy Galbreath Brian Ashmore Alan & Patricia Cobb Sridhar & Manjula Ganta Aurora Health Care Alix Compton Patricia Ganun Christopher Austin Philip Cooper, DMD, MBA Ken Ganun Justine Baldocchi & Kathleen Cooper GC Dies, LLC Michael & Colleen Barbarita Clint Corken GC Packaging, LLC Edward Barrow Carolyn Corn Hans Gebben Bayshore Veterinary Clinic Martin Craighead Kerry Geron Shirley L. Becker Robert Creighton Paula Gianlorenzo Rowland Bell Peter Cremer Barbara Ginader Jennifer Berry Edwin Creter Sharon Gjertsen John Berta Gary Cross Richard Glick Mark Bickel Robert & Carol Cudzilo Jill Gliszinski Paul & Linda Bickel Robert Culver Go Transportation Stephanie Billioux Sarah Dale Goldman Sachs & Co. Chad & Jyl Blessinger Michael Daley Matching Gifts Program Paul Boehm Stephanie Dalle Pazze Scott Goodale Sally Bowles McDonald’s, Menominee, Michigan Seth Goodchild Sharon Bradley Deaconess Hospital, Inc. Doug Goodman Everett Bramhall Martin & Cathy Deale Goodsearch Brent Nerat Agency Margaret Deberry Bridget Gould John & Kendra Bridges Mike Decamp & Geoff Keyes Joseph & Roseann Grady Anita Briggs Becky Delaurentis Grain & Stock Farming David Brostowitz, DDS, SC Del Negro and Senft Associates Meg Grant Ruth Brown Alfred & Susan DeMaria Thomas Grape Richard Brown, Jr. Alyssa Deresky Josh & Stephanie Cormier Donna Brucoli Michael Deverell Carol Lee Gugliuzzo Bruno’s Semi Trailers Peter Dewalt Peter Guo Mike Budd DiGiovine, Hnilo, Jordan & Johnson, Ltd. David Guth Ronae Bunger Nancy Dillabough Christa Gutzler Catherine Burti & Friends Zoë Dirks Peggy Haggerty Stanley & Sherri Burton Doctors in Training Robert & Bonnie Hall Ellen Bush Stephen Doyle Steve & Sue Hamilton Mark & Rhonda Byrd DRA Advisors, LLC Becky Hamilton Brian Cabin, MD Kevin & Cristia Duncan Ken Madsen & Michelle Harmon-Madsen Judi Cain Lynda Dutton Victor Hawdon John Capellupo Mary Lea Dutton Cassie Hawkins Joel Rumm & Mary Jean Carbone Eastern Bank William H. Hayes Linda Carpenter Elm Ridge Funeral Home & Memorial Park Jeffery Hayes Nina Carroll William & Mary Elston Healthcare Communications Group Matthew Carter Epoch Senior Living Laura Heavner Jim Casper Estate of David Smith Dave & Shirley Heim Louis Castruccio Suzanne Evans Kimberly S. Hemphill Joseph Catalano John Farabaugh Reginald Henderson, Jr. Charles Catchpole, Jr. Larry Farmer Ron & Ann Henke Lisa Ferri Peter Figliozzi

20 PULMONARY FIBROSIS FOUNDATION Doris Higa Bobbie Lawson Vicki Nivens Brenda Higley Doug & Isabel Leach Amber Nolan Carmen Hinshaw Louise Leatherdale Northbay Properties Jerry Hinshaw Matt Leavitt & Family Northern Coatings & Chemical Co., Inc. David & Carol Hoech Arnold Lenters Northwoods Animal Hospital Amy Hoffman Larry Lesieur James Norton Jim Holbrook LeveragePoint Media Gary & Mary Jo Novak Hans Holland Daniel Levitan Joseph & Carolyn O’Leary Holland Boy Scouts Liberty Mutual Group Steven Olmsted Elizabeth Holloway Jennifer Lieberman Oppenheimer Funds Matching Gifts Program Bob Hopper & Marti Hopper, PhD Nancy Lifton Oracle Corporation Matching Gifts Program Susan Horvat Janet Livingood J. D. Orr Christopher Huber Katherine Locklin David Osborne, PE Thomas Hulderman Vincent Lombardini Carol Osterman Kristen Hunter Jack Long John Palm George Hutchison Paul & Carol Looney Barry Paradis Bill & Margaret Ismon Simon Lowden Randall Parian J. C. Anderson, Inc. Mary Lou Lynch Choudhary Patel Steven Jackman, MD Elizabeth MacLean Patti Group, Inc. Ileana Jimenez Mahoney Environmental Moncia Pedersen Esther Jimenez Stanley & Mary Ann Mailman William Penaloza John E. Green Company Rick Marini Jeanette Perez & Sylvia Dodge Kirt & Karen Johnson Jack Martin Catherine Persichini Linda Johnson Deborah Matthes Peru Central School Federal Credit Union Oscar Johnson Robert Mayer Peru Pharmacy, Inc. Thomas Johnston Cynthia Mayes Julie Petrizzo Tom Jones & Family Mark & Colleen McArthur Roger & Vera Pfeuffer Eleazar Kadile, MD Alfred McConnell Daniel & Theresa Poland Kary & Kristy Kahle Ross & Elisabeth McCoy Drew Pomerance Scott & Rebecca Kaiser Dawn McGilvery Joy Posoli Lindsay Kaiser Frances Josephine McMahon Angelo Procaccino Carolyn Karch & Family Catherine McMahon Graszer Deborah Provinzano Eric Rubin & Lisa Kates Greig Means Sharman Quinn Candace Kattar Medical of Dubois Operating, Inc. Peter Ragauss Richard Keefer, Jr. Paul & Peggy Meillier Larry Rawlinson Jessica Kehayes Joseph Meindl Re Entry Rehabilitation Services, Inc. Ric & Jan Kelly Shana Merck & Family Jeffrey Rehm, MD Carolyn Kelly Merck Partnership for Giving Carlos Remolina Linda Kennelly Laurie Mertens Richard T. and Kirsten E. Liebhaber Jenny Kernan David & Joan Miller Family Foundation Dolly Kervitsky, RCP, CCRC David Miller Al Riddle Tony & Sheryl Klein John & Linda Miller Bette Rinehart K’NEX Limited Partnership Group Jens & Anne Milling Donna Roberts Knight Automotive, Inc. Jon Mills James Rodgers Neil Knowlton & Family Elena Moglia Rodman Insurance Agency, Inc. Rupert Koblegarde Mary Moglia-Cannon Matthew Rogers Larry Kuhn Elena Moneti Kristine Romano Edward & Rose Kuhn David Mong Safety National Tom Kulczycki James Montano Richard Sasser David & Susan Kunz Jim & Kathy Moore Tom & Cheri Satre David Lake Mortgage Bankers Field Services Kathleen Schlenker Lasher Foundation, Inc. David Murphy Steve & Susan Schnoll Family Rick Lawson Angela Murray Schonbek Worldwide Lighting, Inc. Jayanth Nazareth John Neises

2012 ANNUAL REPORT 21 2012 SUPPORTERS

$250–$499 (continued) Nicole Toledo $100–$249 Marty Schubilske Tony Furton Agency 11th Field Artillery Regiment, 2nd Battalion T. Schultz Town and Country Ford 60th CIVIL Engineers Christina Schulze Tom & Marilyn Tucker Alan P. Goodrich Rifle & Pistol Club Trey Schwab Cris Tuft Marilyn Aaron Martha Seal Don & Nancy Turcotte Aaron Posnik & Company, Inc. Len Serafino U.A.W. Local 845 Frank Abbey Nicole Serratore United Consulting Craig Abbott Paula Severson United Systems Technology, Inc. C. L. Abbott Steve & Linda Shaw United Way of Delaware Carole Abramson Bonnie Shea United Way of New York City Jay B. Abramson, DDS Anthony Shen, MD United Way of the Greater Capital Lila Love Acosta David Sherry Region, Inc. Julia Adams Jack Shoup Bruno & Dana Vais Debbie Adams Asha Singh & Family Matthew Valentino Pamela Adams William Slade Valley Dental Care Timothy & Mittica Adams Scott Smith Jo Ann Vanthournout Adams & Trumpfeller Families Charles Snyder, Jr. Viele, Solimano, Swagler Sam Adas South Shore Engineering Team, Inc. & Chapman, CPA PC Carmela Addimandi Nic Spallas H. D. Waddell Neil Adkins Philip Spencer Eugene Walter Jospeh Adlhoch Chris Spilios Wendy Ward Admiral Mechanical Services Alan Spoon Kelly Warren Aeres Corporation Mark Stanley Joseph & Julianne Warshauer Mary Agre Scott Staszak & Laure Dussubieux Wasmer, Schroeder & Company Anthony Alagna Mike & Margaret Steadman Marshall & Lita Weinstein Melissa Alaimo Michael Stein Gabriella Potter Patricia Alanis Stellar Enterprise, LLC Richard Werner, MD Samuel Alberti Thomas Stemberg Terese West Janet Alexander Donald Stitt Westconn International Trade Association Jerry Algeo Samantha Stone Heather Whiles Karis Ali Mike & Leanne Storch Andrew Whisler Leila Ali-Akbarian Charlie Strange III, MD James & Brenda White Allan M. Doyle, Jr. Revocable Trust Susan Strasburger Sarah White George Allebrand Loretta Streber Mark Whitley Franklin & Rosemary Allen David & Mary Sullivan Roberta Willes Shirley Allen T. & R. Blacks Hardware, Inc. Will-Rich Shoe Company, LLC Zelda Allen Sherri Taberner Winchester Hospital, Nancy Aller Vincent Tacci Nursing Staff Department Altfest Personal Wealth Management Joe & JoAnn Talty Paul Wishman, Jr. Nancy Jo Altschuler Clinton Tebbetts Mary Wolf Kari Alyea Lavanya Thana Woodstream Building Corp. Anne Amedure The Bead Hive Laura Woolf American Sales Industries The Bob and Marie Gallo Foundation Jennifer Wray Anuj Amin The Kobrand Foundation Ellyn Yacktman Carol Amirian The Prudential Foundation Matching Scott & Kara Yates Vincent Anastasio Gifts Program Vijay & Anjana Yeldandi Basil Anderman The Regence Employee Giving Campaign Carol Young Amy Anderson The Thomas Family Fund Belinda Zipf Janann Anderson The Woodlands Nursing Home ZogSports, Play For Your Cause Jeffrey Anderson Nancy Thompson John W. Anderson Randy, Jr. & Erin Thompson Judith Anderson Thompson, Sizemore, Gonzalez Kathy Anderson & Hearing, P.A. Terry & Linda Anderson Anderson & Bryant Families

22 PULMONARY FIBROSIS FOUNDATION Ricardo Anez Patricia Bartels Michael & Donita Bing Paul Angotti Michael Bartolone Vanessa Biondo Annandale On The River Condominium Jim Barton Michael & Roberta Bird Alan & Susan Antenucci Ray Barton Ian Birnie Lori Anthony Kathy Bascom Birthright of Manchester Lowell & Jo Anne Aplet Derek Basile Inez Bishop Terry & Rhona Arbit Harold Basser & Family Rob & Cristy Bittle Susan Ardiff Dwain & Kim Bates Ken & Dorothy Black Alden & Marilyn Arendsen Mike & Cecelia Battle Steve Black Arete Associates Vivian Batts Blackburn, Conte, Schilling & Click, P.C. Dean Arfanis Shirley Baumgart BlackRock, Inc. Matching Gift Program Arlington Construction & Wood Working, Inc. Edward Beach Dale & Eleanor Blake Linda Armstrong Beachview Homeowner`s Association Kipp Blecha Sharon Armstrong Susan Beals Jerome & Elizabeth Blesch Christopher Arnold Henry Bean, Jr. Mark & Jan Block Fred Arnold & Family Beatrice Gilmore Home & School Association Victoria Block Arrow Kitchens, Inc. David Beaumont Michele Blomeke Assurant Foundation Matching Gifts Sean & Vickie Beaver Family Blue Ridge Bible Church LIFE Group, Karen Attyah Gordon & Debra Beck Leonard, Texas Karen Atwood Dennis & T.J. Beck Jean Blummer Dale & Barb Augustine Harold & Donna Beck Donald Bly Marie Autry Margaret Beck Bethann Bock Avid Touring Group, Ltd. G. Candi Beckwith-Jones Laurel Boettge Ali Badihi Bederson & Company, LLP Leonard J. & Carol Bohlsen Charles Badolato H. Douglas Bedinger Edward & Amy Bokenkamp Robert Baglio Steven & Ramah Biederman Family Virginia Leigh Boland Robert & Dorothy Bair Virginia Belcher Shirley Bolles Robert Baker Michael Bell George & Tina Bond Martha Baker David Bell Chuck & Libby Boniti Michael Baker Todd Belvo Francis & Janet Bonneville Patricia Baker Anthony & Nancy Benanti Bookkeeping & More, Inc. Baker & Taylor Michelle Benavidez Paul & Maria Borrelli Greg Baldwin Stacey Bennenbroek Alokadri & Bandana Bose Ronald Balkissoon Marta Bennett Betty Bosley Don Ball Alan Bennett W. Richard Bossert Ball State Federal Credit Union David Bennett Duane Botteicher Bud & Judy Ballard Garrison Bennett Nancy Boulahanis Ann Mammel Balusek Margaret Bennett Scott Bourgeois Tony & Finetta Banfield Michael & Connie Bentley Elizabeth Bourlon Bank of America United Way Campaign Rolf & Dorothy Benzian Kim Bowen Dawn Banker Joe & Penny Berenbaum Clinton & Kendra Bowen Bonnie Bannister Patricia Berger Chris & Joan Bowers Barbara Scott Price Trust Tim Berger George Bowers Susan Barbour Bob & Deb Bergstrom Thomas & Lynne Bowers David Bardeen Elaine Berkowitz David Bowles & Kathryn Bowles, PhD, Gordon Barger Richard O. Berkwitt RN, FAAN Bettylou Bargo Elizabeth Bernasconi Leimomi Bowles Michele Barnett Brig Berney Bowles Construction, Inc. Lewis & Venitta Barrett J. Ernie & Janet Bernice Boyajian Remodeling Lewis Barrett Dick & Lois Berry Sally Boyer Marie Barrett Ron Berry Curtissa Boyer Michael Barrett, Jr. Verne & Nancy Berube Brigette Boyle Barrington Area Library, Inc. David Beshara Charles & Marcia Boyle Shawn Barrow Carolyn Bietendorf Robert Boyle John Barrows Big Apple Deli Products Thomas E. Boyle

2012 ANNUAL REPORT 23 2012 SUPPORTERS

$100–$249 (continued) Melvin H. Burke, MD Mark & Michelle Castaneda Helen Bozzo Gretchen Burkholder Caton, Blieden & Romano, DDS, PC BP Fabric of America Fund David & Bonnie Burnett Causseaux Thomas & Nola Brackenbury Family Frederick Burnham Daniel & Elaine Cavuoto D. James Brademas Janice Burnham Vincent & Terese Cavuoto David & Patsy Bradley Barbara Burrell CCR, Inc. Eugene Bradley James Burton CDK Realty Advisors, LP Marie Brady Mary Evelyn Burton Judith Celinske John Braidwood Kimiko Burton Centier Bank Susan Braidwood Catherine Bury Central Pharmacy Services Jim Braly Buschi Family Certified Packing & Crating, Inc. Miriam Braunfeld Robert Bush Albert D. Chamberlain Gwynn Breckenridge Diana Bushneck Robert Chambers Timothy Breed Dan Butler Virginia Champa Jonathan Breedlove Lori Butler Don & Nancy Chao Terrence Brennan, MD & Gail Brennan Paul Butler Clayton Chapman Elise Breton Maryann Buttweiler Shirley Chapman Ronald & Catherine Brewer L.D. Byas Kathy Chappelle David Brice John & Debra Byl Jennifer Charbonnier Beth Briggs Thomas Cabela Charles Olbon Home and School Association Bryan Brock Graziella Cabrera Chartwell Financial Advisory, LLC Sue Brock Gregory Cabri Nancy Chase Rachel Brody CADCA Gregory Cheskin Molly Broeren Joseph & Christine Cady Skip Chesnut Edward & Sharon Brosius Karen Calhoun Chicago Cubs Baseball Club, LLC Phyllis Broughton Dan Calnan & Family Lois Childers Richard Brousseau Lynn Camomile Chili’s Grill & Bar Susan Brower Gail Campbell Leslie Ching Carol Brown Robert & Jody Campbell Matthew Ching Michael Brown Vicki Campos Michael Chirichella Donna Brown Thomas Cantieri, MD & Carol Cantieri Hungli Chiu Jack & Donna Brown Tom & Tressa Capper Christa Chow Joanne Brown Daniel Carbaugh Christ Church Kitchen Class Kevin & Kathy Brown Care One Home Health Christ Episcopal Church Lori Brown Phil & Debbie Cargill Larry & Jenny Christenson Michael C. Brown Carl & Nancy Gewirz Fund, Inc. Larry & Brandi Chu Peggy Brown Leonard Carmichael Vishnu Chundi, MD Mike Walton & Shari Brown Family Georgia Carnes Church of Christ Brown, Moore & Associates, PLLC Carole Peck Financial Center Donna Ciarfella & Family William Brownell Kim Carpenter Sal & Roseann Cigna Larry, Cameron, & Chris Browning Marie Carpenter Matthew Clarage Norman & Sunny Brownstein Carpenter Property Management Roberto & Sujata Clark Leslie Broyles Gordon Carr, MD Joseph Clark William Brunnler Marty Carr Kelli Clark M. L. & Valerie Buchanan Angela Carrales Christopher & Nicole Clarke Harvey Buck Mike & Julia Carruth Cleveland High Class of ’57 Jeff & Mary Ann Buckner Carson City Assisted Living, LLC B. Joe Clayton Katie Buckner Steven & Janice Carter Jeanne Clemons Scott & Pamela Budd Alice B. Carter Sue Clifford Budnick Converting Shari Cartwright Jerry Clingerman Chris & Felicia Buendo Fernando Casanova Stan, Deb, & Jessica Clingerman Family Linda Burbach Zurn Robert Case Clinton Police Club, Inc. John Burgess William Case Ken & Gladys Clonch Sybil-Ann Burgess Shelley Casey Mary Closser Janet Burgos Adam & Viviane Cashman Don & Cata Clutterham

24 PULMONARY FIBROSIS FOUNDATION Shelia Cochran Jason Richard & Valerie Cross Patrick & Laurie Del Rosso Ed Coffman Betty Crowe Bruce & Denise Delahorne Bill Cofone & Sally Grier Dennis Crowley Delta Community Credit Union David Cohen Emily Cudnik HR & Corporate Training Deborah L. Cohen Cynthia Cuffey Vincenzo Demasi Stacia Cohen Ryan, Justin, & Talan Culberson Family Melissa Dempster Sherry Coldwell Jennifer Culver Elizabeth DeMuth Gerard Cole Harold Cummings Bonnie Denmark Friedman Doris Coleman Joel & Sheri Cummings James Denney Claude Collerette Bill & Sherry Cunningham Fredric & Patricia Dentinger Chris Colli Ellie Currie Robert & Peggy DePrima Donald Collie Janet Curry Terri Dermody Merydawilda Colon Susan Curtin Hojiko Derws Kathleen Commins Chuck & Judy Curtiss Matthew & Theresa Dery Anne Conery Fay Cyzmoure Bharti Desai Claire Coney Matt & Wendy Czarnecki Desert Vista Dental Jim & Dorothy Connelly D. S. Specialties, Inc. James Detchmendy Tim & Gail Connolly Dave & Christine Dailey Phillip & Paula Detchmendy Family James E. Connors Steven Dale Mary Dettinger Muriel Cook Lucian Dalton, Jr. Michael & Melanie Devereux Thomas Cook Chris D’Amico & Family Marie Devlin Richard Cooke, USMC (Ret.) Sheridan Danforth David & Julie DeWitt Alan Cooke Karen D’Angelo Joseph Deyoung Mike & Jackie Cooke Carmen & Kathy D’Angelo Family DFCI BOC Bill & Diane Cooley Marjorie Daniels Clara Dial & Family Cooper Rail Service, Inc. Nani Daniels Isabel Diaz Isabelle Coovert Paula Daniels Joan Dickens & Family Anne Corapi Jana Danyliw & Family Hope Dickinson Dana Corbett Roberta Darbyshire Juliet Dickinson Kenneth & Jeanne Corcoran Marjorie Daugherty Marji Dickson Cordone Family Yolanda Daugherty Frank Digiacomo Core Group Daugherty Systems, Inc. Charles & Brenda DiGiovanni Richard Corkhill John Duaghton Adele DiGrande & Family Derek & Rama Cornelson Purvi Dave Imogene Dillon John Costello Denise Davella Joann Dilworth Maryellen Costello W. R. Davenport Jeff Dinan Baird & Marcia Couch George & Joan Davey Don Dineen Diana Couch David E. Benton, Sr. Builders, LLC Diner Enterprises, LLC Donald Coughlin Chuck & Marie Davies Linda Dingee John & Ruth Coughlin Carolyn Davis Michael Dingee Cynthia Coulter David & Trish Davis Steven & Margaret Dinger Dan & Betty Cousins Family Debbie Davis Ann M. Disharoon Wayne & Beth Couto Jennifer Davis Rick & Cheri Distefano Covenant Environmental, LLC Patricia Davis Grace Ditter Cozzy’s Polaris Dave & Margaret Dawson Charles Dixon CPAC Nancy Dawson Misty Dixon Kimberly Young Craddock Dayton Rogers Marie Dobbins Lawrence Crane, MD Frank & Madalyn Derose James Dobies Joanne Cravero Bob & Nancy Dean Janet Dobson Jerry Crawford Gerald Dean, MD & Patricia Dean Muriel Docker Mary June Creek Preston Death Robert Doggett, Jr. John & Diane Crim Debevoise & Plimpton, LLP John Doherty Amanda Crinks Vincent DeChellis Mary Doherty Laura Cristiano Marguerite DeDapper Laura Dominici John & Nancy Cronin Andrew DeJunco David & Patricia Donahue

2012 ANNUAL REPORT 25 2012 SUPPORTERS

$100–$249 (continued) Doyle Eldridge Tish Fisackerly Robert Donlon Julie Elias Jim & Barbara Fischer Family Mary Kate Donnelly Regina Elliott Dan & Nena Fitzgerald Jan Donovan Brad Elliott Thomas Fitzgerald Ashley Dooley Tom & Kathryn Ellis Glenda Fjellheim & Family Karen Dopher James & Susan Ellison Neal Flannery Jerold Dorfman Elm Hill Labs, Inc. John & Violet Fleischer Diane Dorr Elmwood Dental Group, PC Paul Fleming Megan Doscher Employee Benefit Management Corp. Flemington Car and Truck Country Nilesh Doshi, MD & Sangeeta Doshi Paul Gonwa & Wilkie Engle Family Edward Flynn Wayne Douce Walter Englebrecht Liam Flynn Richard Dowd David Englin Joyce Fogelman Clarissa Downey Michael Esmonde Brian Folks Mike & Susan Drake John Espey Michael Fontana Roberta Drell Estate of Margaret G. Moore Joy Foote Peter Drench Barbara Etherton John & Nancy Foppiano Meredith Drench Petter Etholm Helen Forbes Steven & Bonnie Dresner Patricia Euston Gib & Jane Ford Elliott Drobbin Jennifer Euston Ford Employees Noelle Drollas Exit Real Estate Partners Kathryn Ford Dave & Mary Druker Paul Exstrom Sarah Ford Mark & Pamela Dudgeon Faber Agency, Inc. Suzie Ford Heinz & Elke Duerring Pilgrim Family Rudy Forge Heinz Duerring & Lorretta Fosler Rev. James Fanelli Gary Showers James Duffy Barbara Fanesi Brenda Fosen Mary Duhig Angelo Faraci Robert Foshee, Jr. & Lindel M. Foshee Virignia Dukart Farbest Foods, Inc. Bart Foster Leah Dulaney Jeremy & Gill Farmer Thomas Foster Lisa Dumoulin Lena Farrell Bill & Carolyn Fowler Dunckley & DeMatteo Family Pammi Farren Walter Fowlkes Diane Dunn Silvia Farro Platzer Fox Architects, LLC Sam Dunn Sharon Farrow Joseph Foyle Janet Duprey Cheryl Fasano Steven & Kathleen Francis Elizabeth Durels & Family Gail Fearing Gilbert Frank Carolyn Duris Karen Feeney Katherine Frank Susan Dutton Mady Feist Frank G. Maggio, Esq. Tiffany Dutton Allie Feldman Peggi Franks Elaine Dworak Margaret Feller Monica Franta Trey Dye Fellowship Baptist Church Jon Franzen Vitaliy & Lauren Dymna Elizabeth Fender Christina Frazel Carolyn Dystrup Roger & Kathleen Fendt Jerome Frazel Nina Dziatlik Barbara Fenton Jerome Frazel, Jr. East Boston Savings Bank Heather Fergeson Jim Frechette Eastchester Professional Fire Fighters Anthony Fernandes Fredericksburg & Spotsylvania Local 916 Anna Ferraro National Military Park Richard Eaton Mike Ferrato Doug Fredin Cheril Eazell Becky Ferree & Pamela Daecher Ann Freedberg Milt & Florrie Ebner Robert J. Ferullo, PhD Freedom Bank Dale Eding & Carol DeKorte Elizabeth Fette Eleanor Freeman Mary Edwards Steve Fields Cori Freeman Ellen Effinger Fred & Colette File Audrey Freise Michele Eggers Dennis Finch Lloyd & Roberta Frissell David & Donna Einhorn Scott Fineron Jim & Laurel Frost Susan Elder Bert Fink Susan Frost David Eldredge Fire Equipment Veronica Fuentes

26 PULMONARY FIBROSIS FOUNDATION Richard Fugate Joseph & Sandra Gilbert Margaret Grimm Terry Fulton Bill & Val Giles Mark & Cathy Grippo Paul Funk Jon Gill & Family Libby Griswell Mitch & Mona Funk Richard Gillette John Groff Carol Furda Laura Gilmore Cynthia Grogan Berta Furukawa Marian Ginsberg Loeb Richard Gronlund Charles Fuson David Ginsburg Lloyd Grooms William Gabriel Charlotte Giordullo & Family Elizabeth Gross & Family Valerie Gaine Jillion Gislason Linda Gross Jean Gajewski Richard & Martha Gladfelter Jeff Grosshauser Raj Gajwani Carol Glentz Richard & Barbara Grossman Victor Galek Catherine Glick Walter & Jane Grove Mariana Gallo Sandra Glick Matthew Grow Arch Galloway III Charles & Linda Glowicki Ronald & Cindy Gruca Kimberly Ganley Karen Gmitter Bud, Jamie, & Morris Gruver Stephanie Gannon GMS Decorative Concrete A. Thomas Guertin Tricia Ganun Guyon Justin Godfrey Arati Gurav, MD Edilia Garcia & Lila Bon Garcia Scott & Barbara Goering Roy & Louise Gutierrez Yolanda Garcia Sarah Goff Michael Gwynn Shirley Garcia Joe Goffard H&H Auto Sales, Inc. Garden Education Center of Greenwich Sushrut Gogte David Hack Roger Gardner Nicole Gohagen Christine Hafer Thomas Gardner Antonio Goicoechea Lowell Haga & Family David & Myrna Garfield Bruce Goldman Linda Hagaman Maria Garoiu Richard Goldsby Sheri Hagan Baird Garrabrant Raymond Schlude & Deb Golojuch Denice Haines Ward & Belinda Gaskins Carl Goltermann John & Laura Haldane Gates & Gates Associates Susan Gonzon Gary & Linda Hale Gateway Bank of Southwest Florida Marc & Karol Goodwin Terence Hales Kay Gatzendorfer Steven Gordon Sandra Hall Phillip Gayle Brian Gordon Robert Sarno, MD & Deborah Hall, MD James Gearen Lynda Gordon Joakim Hallin John Gearen Marjorie Gordon Mike & Cathy Halloran Gregg Geerdes Dorothy Gore Amy Hallowell Kyle Geiselman Kathy Gose & Family Emerald & Carol Halseth Jeffrey Geisler George & Patricia Gothot Julie Halston & Ralph Howard Anthony & Donna Gentile Bill & Cathy Graber Mary E. Halston Ronald Gentile John Grace Nikki Hamblin Dennis & Barbara Gentry Paul Graham Melissa Hames Mel & Rosalina George Grand Strand Optimist Club of Myrtle Beach Patricia Hamilton George W. Lowry, Inc. Robert Grane Walter & Carol Hamilton Justina Geraci Andrew Granger Cheryl Hampton Kenneth Gerard Matthew Barmasee & Kim Granieri Alice Han Brian & Kyleigh Gerlach Laura Grannis Hancock T.V. & Appliance Tommy Ray & Sheryl Germany Cheryl Gray Maxine Hand John Germino Myrtle Greene Hanes Overby Family Foundation Gary Gersh Garth & Sandra Greenlee Debbie Hanifan Faith Getty Greenshades Software Robert & Christine Hanifin Alexander & Cynthia Ghiz Paul Evan Greenwald Joseph Hanisco Robert & Vivian Ghiz Lance Gregory Stephanie Hanrahan H. Williamson Ghriskey, Jr. Jeremiah Griffin, Sr. Brett Hansen Joanna Liapes Beverly Griffith Lorraine Hansen Sandra Giarde Allen Griggs Ruth Hansing Catherine Gibran Vivi Grigsby Helen Hanson Timothy Gibson Alan Grimaldi Kathlene Happel

2012 ANNUAL REPORT 27 2012 SUPPORTERS

$100–$249 (continued) Lou Hetrovicz Lily Hurlimann Emmett Hardiman Geoffrey Hewitt Rick & Susan Huth Bonnie Hargraves Laura Heywood Anh Huynh Raymond & Joette Harkins C. Joseph & Lynn Hickman Rebecca Hyatt Laurette Harmon Reva Hinderliter Nancy Hyder James Harpham David Hines Ichabod Crane Elementary School, Robert Harrell Greta Hodge Special Education Department Brenda Harrelson Patti Hodges Paula Ichniowski Todd & Connie Harris Jessica Hodges Linda Ihlo Wayne Harris Don & Lee Ann Hoenert Daniel Ingber Jeni Harris Kent & Sharon Hoffman Maryann Innes Anne Harris Ronald & Rosalin Hoffman Insight Pharmaceuticals Corporation Janice Harris Sheila Hoffman InterDyn CFO Consulting Richard P. Harrison, Sr. Kimberly Hogan Ipswich Bay Advisors Nancy Harsar Edward & Carol Hogan Family Richard Isaacs Rick Hart Saul & Ramona Holguin Melody Iszler Ronald Hart Angela Holland Rada Ivanov Tim & Tami Hartman Kathryn Holman Margaret Iverson Sharon Hartnett Mary Holmberg Adrienne Ives Doug Hartsell Tom & Julie Holt Melonie Ivey Larry & Lori Hartsook Holt Family Cheryl Iwane Khaled Hashem Ruth Homan Ramanua & Revathi Iyengar Susan Haskins Bettie Honeycutt Charles Jackson Don Hassall Kelly Hong Philip Jackson Helen Hassman-Deal David Hooker Dug & Sharon Jackson Tom & Louise Hasten Tim Hopewell Henry Jackson Desmond Havelicek Bill & Mary Hopfinger Linda M. Jackson Peter & Jeaneane Havstad Linda Hormann Megan Jackson Robert Hawk Stuart Horn Matthew Jahn Joan Hawkins Richard & Marie Hornstein John Jamer Paula Hawks-Deluca Glenn Houck Jeff Jamer Happy Hawn Edward House James Fahy Design Lynne Hayes Gale & Dicksie House James McHugh Construction Co. John Hayes Houston Galleria Leadership Team Arthur & Roberta Jameson Malcolm D. Haymes Houston Metro Market Team Jeanie Jamieson Karl Lynn Hearn Lindell & Janice Hoy Janet R. Vanthournout Thomas Heath Erich & Pam Hruda Katherine Jansen John & Christy Heaton Maiko Tu Chen Hsu Richard & Mary Ann Janson Janet Heavner Ching-Huang & Yu-Chu Huang Umair Javed Jeremey Heinerich Donna Hubbard David & Linda Jenkins Nancy Heitmeyer Hal & Jennifer Hucks Douglas Jenne Mark Helquist Mathew Huckstep Peter Jennette Kristen Helsinger Robert Hudson Kevin Jensen James & Doris Hemming Bill & Kshama Hughes Family Chris Jenson Lynn Henderson James W. Hughes Barbara Jepson Henke Farms, Inc. Josh Hughes Susan Jermain Robert Henner Anastasia Hull JML Holdings James & Mercedes Hennessey Michael Hulskotter & Family Dorothy Johnson Dave Hennessy Yvette Humphries Cody Johnson Mary Beth Hennessy Phyllis Hunt Donn Johnson Lila Herbert William Hunt Kelli Johnson Lourdes Hernandez Charles Smith Hunter Laura Johnson David & Cheryl Herr Stephen & Cynthia Hunter Lauralyn Johnson Linda Herriotts Dennis & Janet Hunter Michelle Johnson Mark, Katie, & Anne Herzog Arlene Hurley Norman & Teresa Johnson

28 PULMONARY FIBROSIS FOUNDATION Scott Johnson, MD Bruce Kilpatrick Paul La Schiazza Thomas Johnson K’ima:w Medical Center Steve & Maryrose Labracke Tim & Kris Johnson Paul & Maxine Kimball Callie Labreche Joliet Officials Association, Inc. Ross Kimmerle, MD & Janet Kimmerle Jennifer Labs Jerry Jones Ronald Kimzy Gerard Lachman Shirley Jones Talmadge King, MD Christine Lafollette Cecilie Jones King Enterprises 2000 LLC Brian Lahan Coosa & Coralee Jones Kara King-Lidell Susan Lahre Jay Jones Eileen Kinney Lakeside Foods, Inc. Melody Jones Kirby Consulting, Inc. Tony Lamanna Dorothy Jonson John Kirkbride Kirk Lamb Marcia Jordan Michael Kitzes Allan, Petra, & Kurt Lamon Emanuel & Theresa Jordano Mark Klarman Landmark Signs, Inc. David Jorgensen Susan Klatt & Family Mervyn & Faith Landsman JRF Construction, Inc. Stanley Schrier, MD & Barbara Klein Susan Lang John & Kate Juech Renee Klein Pamela Lannon Jonathon & Tracy Kaan Edwin Kleinman, MD Todd Laporte Virginia Kachline Walter Klingbeil Nancy B. Lares-Estep, MD Jeep & Shirley Kahle Geraldine Klitzkie Barbara Jo Larkner Anita Kaimal Kat Knies Laurel Larson William & Judith Kaluzny Mary Knight Merle & Bonnie Laswell David W. Kamp, MD & Joann Kamp Dennis Knoedler Barbara Laudel George & Alice Kanstor Family Sheree Knoll Steven Laudel Yvonne Kaple Vivian Kobe Myra Laughter Peter Kapp Stephen Koehler Melissa Lavin Robert Karol Robert Koenig Cheryl Rhodes Law Edward Karp Kohl Trading, LLC Constance Law Samantha Karsten Burt & Lynda Kohlman Robert Lawder Alan & Susan Katz Dinah Jammal Jean Lawrence, MD Nancy Katzman Lokesh Koneru Don & Barb Laws Jeff & Susan Kaufman John Korphage Perrin Lawson Kristi Kaufman Michael & Jaclyn Kostrzewa Drew Lawton Gary & Betty Kavanaugh Shari Koutzen LBS Tennis Association Saul & Rima Kay Donald Kowalewski, Jr., DO Diana Lear John Kayser Robert Kowalke Kim Lebert William Kazanis Norman W. Kowalski Thomas Lechien Joyce Keaton KPMG, LLP Rita Lechner Vicki Keen Roberta Kraft Brian Leclair Andy Keeney Kathleen Krak Lavonne Ledonne Grace Kehoe Amanda Kraker Roger Lee James Kehoe Bill Krakower Bruce Leemann Karen Kehoe Jacquelyn Kramer Scott Leemann Mary Kelleher Steve & Ann Kramer Steve Lehotay Richard & DiAnna Keller Raymond Kratzer William Lenahan Jimmy & Patty Kelley Stephanie Kreml Brenda Leng Sam & Beverly Kelley Krenzien, Krenzien & Associates, Inc. Diane Lenoir Kirby & Margaret-Ray Kemper Gloria Krieger Mark Lerch Christine Kenney Jeff Krillenberger James Gunn & Myra Lessner Scott & Karen Kenworthy Neil Krizek Chris Atkins & Lauren Letellier William & Marilyn Keroff Marlys Kroenke Henry & Minna Levin Neil Kessner Peter Kroll Louis Levy, MD Tom & Susan Keyes Donna Kuchwara Michael & Elizabeth Anne Lewin Mamta Khandelwal Helen Kung Alan Lewis Jim & Anne Kildow Randy Kuntz Bobbi Lewis Betty Kilgore Frank Kunze Maeve Lewis

2012 ANNUAL REPORT 29 2012 SUPPORTERS

$100–$249 (continued) David Lynch, MD Susan Martin Randy Lewis Wendy Browning-Lynch Michael & Rena Martinolich Robert Ohlerking Michael Lynn Catherine Mascia Libby Perszyk Kathman, Inc. William Lyons Brian Masefield Michael & Lisa Lichtenberg M. Scher & Son Gary & Leslie Mason Gregory Liedtka Rick & Mary Macatee Gloria Masterson Phyllis Louria & Patricia Liesik Randall Macblane John Masterson, Jr. Life Spring Community Church Bruce MacCallum Tom Masterson Diane Limmer Maria Macias Kenneth Matheny Hank & Rosa Lin Joan Mackay Andy & Heather Matthews Elizabeth Linck John Mackessy Ronald Matthews John & Barb Lind Donna Macknight Josh Mattison Colette Lindemann Percy & Linda Maddox Family Rand & Julie Mattsson Ray Linder, Jr. Jill Madeo Elizabeth Maurer David & Bonnie Lindstrom Bernice Magalnick Paul & Stacy Mauriello Michelle Link William & Jewel Magee Felicia May James Lipscomb Ledajoe Maggio & Family Robert May, MD Claire Liszkay Laura Magliulo Dixie Mayer Little-Morris, LLP TJ Magnell Mayer & Stock Family Mark & Vicki Livasy Sean Maguire Richard McAdam Llano River Golf Course June Mahoney Tracy & Sheryl McAtee Helen Llewellyn Arlene Max Mahrenholz Alice McBride Margaret Lloyd Clarence Malinger Bill & Gail McCabe Kelly Locklin Marcia Pounds Malone Andrew McCarthy Mindi Logan & Family Francis & Mary Ann Maloney Robert & Virginia McCarty Carla Lohrer Fred Lake & Catherine Malpass Terry & Debbie McCarty Michael Lohrer Craig & Barbara Maltby Mitchell McCauley Carmine LoMonaco, DDS & Louise LoMonaco Carl Manchaca J. Lawrence McCleskey Kristin Longaberger Jeff & Donna Manchisi William McColl Joni Lore Mancino’s Team II, Inc. Brad McConnell Ralph Lotshaw Meredith Mann Louanne McCranie Louis M. Smith Landscaping Michael Barber & Erin Manning Gary & Pat McCullough Ginny Louloudes Manning & Associates, Inc. Gregory McCullough Candace Low Rita Manny Loretta McDaniel Lowenstein Sandler Caryn Manske Sean McDonald Jeffery Lowney Yu Chen & Bertrand Mao Family Valerie McDonald Jack Lu Charles Marchese Aline McDonnell & Family Donald Lublin Stan Marciniak David & Marie McDuff Rosemary Luby Jim & Andrea Maremont Mary McElroy Denise Lucas Odalys Marinas John & Irma McGinn Glynda Lucas Mary Jan Marino-Lares Walter & Mary Ann McGinn LucasArts Rachelle Maritzen Martin & Julia McGirt Heather Lucier Market Share, Inc. Charles McGregor Bertha Lu-Dienes Marlett & Associates, John McHale Ty Luig Certified Public Accountants, LTD John McHugh, Jr. Elizabeth Lukasik Jim & Barbara Marran John P. McHugh, Sr. Billy & Peggy Lumpkin Robert & Deborah Marro William McHugh Yensy Luna Donald Marsey Katie McKeehan Hart Mark Lunn Monte Marshall Thomas McKenna Ingrid Luongo Raymond Martel Mark McKenzie Michael & Joy Lurie Cecelia Martin Mary McKey Clair Lute Maria Martin John & Sue McKinley Marvin Lutz Dan Martin William & Susan McLaughlin Ruth Lynam Scott Martin Thelma McLean James K. Lynam Sue Martin Cheryl McNamara

30 PULMONARY FIBROSIS FOUNDATION Stan & Dian McSwane Debra Montano Steven Nagle Arthur McTighe, MD & Susan McTighe Amy Montanus Anna Nagorney Mary McTigue Frank & Bernice Monteleone Joan Nagy Rosemary McTigue E. S. & Guem Moon Family Cathleen Nails Barbara Meier Bob & Donna Moore Jennifer Napier-Valvo Meli Enterprises, Inc. DJ & Marine Moore Patty Napoleon Mary Melone Margret Moore Lucas Narducci Rick Melone Ken Moore Shaun & Jeanna Nash Memorial Home & School Association John Moore National Metal Finishings Corp., Inc. Diana Mennig Smith Serena Moore Eric & Jackie Nazim Pauline Menon Ernesto Morales NCS Pearson Dolores Mentzer Ed & Cindy Morea Family Carolyn Nelson Tony Meola Tracy Morehouse Luke & Marie Nester Mercy Fitzgerald Hospital, Bill Morgan Emil & Patricia Neu Patient Access Department Charlotte Morgan Joseph & Eleanor Newirth Harvey Merlin, MD Cynthia Morgan Brian & Lauren Newmark Family Max Merlin Francis Morgan Deanna Nied Jean Merrill Shelby Moritz Maryn Nielson Emily Merriweather Cheryl Morley Kate Niemann Robert Mervine Morosco Realty Viviane Niemann Lou & Roya Meshulam Amy Morse Mary Lou Niemuth Mary Messer Susan Moss Peggy Niswander Vincent Messina Moss & Barnett Pro Association Lanie Nivens Holly Meyer Motorola Solutions Foundation Tina Nizer Priscilla Meyer Marjorie Mountain Nodak Oil Co. Scott Meyer Martha Mountain Noell Agnew & Morse, LLP Joyce Meyh Robert Mourad, Sr. Tom Nolan Sheila Miano Lane Moyer & Family Richard & Nancy Norman Michael Roth Trust Mozzone Lumber Co., Inc. William Norris Sergio & Pilar Micheli Laurence Msall Kristine Norter Jeff & Linda Mickelson Alan Mueller Paul T. & Barbara A. Norton Michael & Elizabeth Miles Jim & Sandy Mueller Julienne Norvik Milton & Corrine Miller Sherry Mueller Mark & Sandy Nosack Scott & Pat Miller Mark Mulvaney Teresa Nowak Gerry Miller Maxine Mundell David & Patti Nuermberger Beverly Miller Eric & Jennifer Munro Fred Nugent Judy Miller Sue Murdock Numerica Financial Services Mike & Phyllis Miller Barbara Murphy Peter Nydahl Phil & Beulah Miller Colleen Murphy Oak Brook Mechanical Services, Inc. Millennium Dental Arts Janis E. Murphy Oakland Heights Baptist Church Loren Milliman Martha Murphy Scott & Annemarie Oats Jackie Mills Maura Murphy Margaret Oberrender Robert Milovich Melissa Murphy Colleen Obozian David Miner Sara Murphy Allen & Mary O’Brien Joe Miniat Susan Murphy Diane O’Brien Anne Minnich, PhD Timothy Murphy Margaret Ochylski Luc Miron Keith & Laura Murray Mary O’Connor Arthur Mitchell Vergil Murray James Odell Jo-Anne Mitchell Dona Musgrave William Odell Shirley Mitchell Mutual Bank Gene & Christina Odum Mitchell Industries, Inc. Eric Myers OFS Brands Holdings, Inc. Mittman Rehling Investments, LLC Bob & Patty Myers Paul Ohanesian Patrick Moloney LaVesta Myers P. Coleen Ohlinger Dennis Mong Sherrie Nachamkin Jay Ohlinger Bill Montana Samuel Nadler Jon Ohlinger

2012 ANNUAL REPORT 31 2012 SUPPORTERS

$100–$249 (continued) Passaic County USBC Patricia Pittman Josh Ohlinger Sahdev & Carolyn Passey Family P-K Tool Family Oklahoma State Regents for Higher Charlie Pastorelli Plattsburgh Police Local 812 Education Academic Affairs Dept. Manan Patel Pneumatic Technology, Inc. Gretchen Oliver Asha Patlikh John Pohlen Doreen Oliveri Chris & Kathleen Patrick Michael Polanski Shannon Olney William & Barbara Patten Yana Poliashenko OLR CME Committee Cathy Patterson Bernard & Elaine Pollock Ted & Diane Olson Pollyann Patterson Lynn Polorski, MD On Target Pest Control, LLC Paul Pattison Albert Polvorosa ONC Gene Patton & Family Alex Harris Shawn Laree O’Neil Marcus Pauls Jim & Sandra Pope Thomas O’Neil Pawtuxet Valley Medical Operating Account Christine Kveton Mindy Ladd O’Neill Chris & Lisa Peabody Trina Poretta, DO Kathleen O’Neill Peachtree Endodontics Dana Porter Catherine O’Neill David Pearlberg Steve & Glynis Potts Edward O’Neill Seth & Pamela Pearlman Gary Powell Jennifer O’Neill Nancy Pearson Lauren Powell N. W. Oner Elizabeth Peck Prairie Capital Advisors, Inc. Martin & Heather Oppenheimer Ruth Peck Prairie Farms Dairy, Inc. Linda O’Reilly Stewart Peck Prairie Material, Lee Ann House Deb Orlitzky Kristen Pedersen Alan & Sandra Pratt Elaine Orman Clarissa Pena Suzanne Prebish Margaret O’Rourke Gary & Alyssa Pendleton Cline & Judy Preble Kathleen Orr Jeremi Pennington Precision Perforated Products Raymond Orr Penzeys Spices Richard Preece Maria Ortiz Sharon Peress Susan Preston Vicki Osborne Cristina Perez Janine Prewitt Richard & Dolores Osier Tamra Perez Jennifer Price Kathy Ostby Perez Brothers Stuart & Estelle Price Scott Otis Melissa Perkins Curtis & Althea Prins David Ott, MD William Perpich, Jr. Priority Health Otwell Family Alice Perry John Procaccino & Family Out of the Woods Furniture, Inc. Peru Lions Club Peter & Virginia Proestakes Bob & Krista Overlock Clark & Hadley Peterson Professional Anesthesia Services Camilla Owen Elizabeth Peterson of Eastern Pennsylvania Duane Oyen Gail Peterson Grace Proto & Family Michael Paetzold Thomas E. Peterson Kathleen Prouty Nicole Paez Russell Petrak Debbie Provencher Mike & Mary Palmer Dorothy Petrin F. Carole Pruett, LCSW, LMFT, DCSW Chris Palmer Joe & Linda Petrusha Pryba, Tobin & Associates, PC David Palmer Pfizer Foundation Matching Gifts Program Gary & Jeanne Przewoznik John & Janet Palmer Philips Alice Purington Jean Pan Donna Phillips, PhD Palatine Youth Baseball/Softball Frank & Ann Panico Jim & Toni Phillips Jill Pyle Alex Panlilio Susan Phillips-Gray Helene Quail Marie Panos Dorothy Phipps Quality Design Nor’easter Pools, Inc. Tina Pant Piedmont Dairy & Farm Equipment Co., Inc. Frank Quevedo Paul Paolini Piedmont Endocrinology, PA Victor Quinones Leah Pappas Lynore Pierce Daniel Quirk The Parke at Manakin Woods Kristina Pilgrim Rein Rabakukk Homeowners Association Roy Pilkington Victoria Radican Hass, Patti, & Matthew Parker Dennis Pirronello Trisha Radner-Martin Parsons Mortuary Gus Pisano Sally Radican Patricia Pasquesi-Nemec Paul Pitkin Brett Ragsdale

32 PULMONARY FIBROSIS FOUNDATION David Rankin Judith Robinson Tom & Pat Sailer Henry Rankin Roderick Robtoy Dusty & Marilyn Sain Jaikar Rao, MD Tiffany Roby Ian Saladyga Diane Rapp Carol Rodden Sharon Saline Stephen Ratliff Patricia Rodgers Joe & Vickie Salokas Robert Reams Linda Rodgers & Family Joseph & Loretta Salokas Mike & Debbie Rechin Anna Rodrigues Joanne Samila Bhaskar Reddy Alvaro Rodriguez Chuck & Norma Samila Bobbi Reed Orlando Rodriguez Frank Samp & Family Marjorie Reed Lillian Rogers Kathleen Sampeck Matthew Reed Mary Rogers Sample Lumber Company, LLC David Reed & Family Mike Rogers & Family William Sanders Michael Reeder Rob & Kalla Rokoff Mariana M. Sanderson Charles Reeves Maribel Roldan Linda Sandor Sydell Reeves Rolls Royce Corp., Test Instrumentation Donald & Elizabeth Sands Pamela Reich & Dynamic Data Group Rob & Anna Sanford Earl Reid, Jr. Mary Ann Romain Sanofi-Aventis Kathleen Reilly Eleanor Romanelli Santa Maria Ford, Inc. Neal & Lillian Reilly Inez Romano Nancy Santaguida Reinhardt Family Roxann Romano Anthony Sapienza Bill & Audrey Reinsmith Jude Roppatte Michelle Sapyta Robert & Suzanne Reisig Martin Rosa, DDS Kim Satterwhite Rev. John Reist David Rosenberg Gerald Saur Daniel Remahl Jeanne Rosenberger Ron Savlov Remco Supply Robert & Patricia Ross Savoia Pastry Shoppe, Inc. Barbara Rentschler Ellen Ross Stella Sawko Cathleen Restaino Jillian Ross Amit Saxena Thomas Reszler Bernard & Deborah Rosselli SBJC Ken & Judy Revis Rosalind Rossi Rachel Scarlett Josephine Rexer Lucia Rotella & Family Thomas & Michelle Scarpelli Evelyn Reynolds Michael Roth Peter & Susan Scauzillo Marlene Rhoden Charles & Barb Rothfuss Schaefer Electric, Inc. David Rhodes & Family Susan Roublick Louis Schael Tricia Riccardi Brian & Ericka Rowland Christina Schatz Louis Ricci Veronica Rowlett Neil & Wendy Scheer Jane Rice Richard & Kate Rowley Cara Schillinger Lisa Rich Caroline Royster Robert & Mary Schlembach Dallas Richards Jorge Rubel Walter Schlosser, Jr. Stephanie Richman William Rubin Richard Schlueter Kristin Richter Emily Ruddell Holly Schmeiser Sarah Riddles Joyce Ruddick Herbert & Ingeborg Schmidt Frank & Martha Ridoux William & Paula Rueb Arthur & Diana Schmidt Catherine Riegle Genevieve Ruiz Pete Schmitt H. John Riley Kathleen Rulon Jenna Schmitz David Ring Debra Runingen Ken & Sharon Schmitz Robin Rittenberger Greg Rusch Beverly Schmutzler Wanda Robb Bill & Erin Russell Jodi Schoenbrun Carter Kil Ye Robbins Marilyn Russell Sharon Schorn Robert A. & Carole H. Johns RVC Living Trust Margaret Ann Rutledge Steve Schram Arnald & Gina Roberti Ryne-Wood Builders, Inc. Michael Schuette Carlon Robertson Peter Sablich Francis Schulte Carmen Robes Fran Sachs Col. Jimmie & Martha Schuman Marianne Robinson Sacoma International, Inc. Steve Schumpp Bryan Robinson Safety National Treaty Reinsurance Group Schutrumpf and Koren, P.C. Cynthia Robinson Steven Sahn, MD Martha Schwab

2012 ANNUAL REPORT 33 2012 SUPPORTERS

$100–$249 (continued) Matthew Silvestro SPX Rochester Pat Schwalbe Evelyn Simmons Frank Squilla Helen Schwartz Ronald Simons Eric & Suzanne St. John Janice Schwartz K. J. Simpson St. John School Class of 1970 Carl & Virginia Schwarz Patricia Bates Simun Michael & Angela Stafford Craig & Christine Scott Ryan Walsh & Stephanie Sinaikin Geraldine Stairet Edward & Sally Scott Stan Singer Laurie Stalker Patricia Scott Gregory Singleton Heather Stalvey Valencia Scott Jennifer Sisson Evelyn Stander Valerie Scott Kenneth Skinner Phillip Standley Eileen Scoville Howard & Sharon Sklar Janet Stanislawski Peter & Miriam Seagle Raun & Marjorie Skyrm John Stanton Suzette Seagoe Patricia Slantis Jerry, Rhonda, & James Seashore Plastic & Hand Surgery Center Mike Sleboda Stapleton-Cook Family Joseph Sedia III Glenda Sleeper Jennifer Starkey Julie Seedig Carol Slipper Linda Staubitz Rudy Segovia Grace Smeriglio John Stauffer, MD Nicole Seidel Mark & Suzanne Smiga Family Paul & Carole Steadman Kala Selvamanickam Barbara Smith Robyn Steely John & Carol Senn Thomas Smith III Steiner Electric Company Sentar, Inc. Julie Smith Melissa Stender Michele Sera Pamela Smith Betty Stephens Jeremy Serafino Ray Smith Lisa Sternlicht Stephanie Serino Carl Smith Audrey Stetter Mike & Elaine Serlin Casey Smith David Stevenson Andrew Sessa Gregory Smith Glen Stewart Philip & Virginia Sessoms James & Vera Smith Bill Stewart Steven & Robby Setrin Family James Smith Maureen Stewart Al & Carole Severson James Smith Allison Stillman Renee Severson Judith Smith Giovanna Stincer Sanford Severson Karen Smith Don Stiner Kathleen Seweryn Katherine Smith Sandra Stockel Carl Shaff Linda Smith Joan Stockfield Samir & Rupal Shah Pam Smith & Family Stockman’s Market, Inc. Ashish Shah, MD Steve Smitherman Stockton College, Social Work Program Shannon Law Associates Carolyn Smolinski George & Louise Stoffa Nazima Shariff Stephen Snider Richard Stoffa Cathy Shaw E. Y. Snowden Sue Stonebraker John Sheehan, MD & Barbara Sheehan Susie Snyder Molly Stoner Brendan & Mary Sheehan Gene & Karen Sobota Timothy Stookesberry Robert A. Shelton Elizabeth Solsburg Adney Stowe R. S. Shenoy, MD Mukthalata Somanath Margaret Straka Art Ross & Abbe Sher Jennifer Sotelo Sallie Strang Michael Shields Southerly Interiors, Inc. Joan Stratton Shinnyo-en Foundation Southwest Florida Kiwi Club Don & Adriana Streicher Steven Sullivan Southwest Hide Company Darrell & Jane Stringer James & Rita Shiue Spartan Promotional Group Ken Stroud Mary Shoemake & Family Paul Spelman Doris Stubber Kristi Shump George Spencer Joan Stup Carol Shyer Skip & Jan Spencer Carrie Sturn Richard Sibilia Charlotte Spier Dolores Sudholt Reba Sikorski & Kathryn Redding Donald Spiller John Sullivan Stephen I. Silberfein Doug & Colleen Spink Kevin Sullivan Susan Sill Spoleta Construction Corp. Ruth Sullivan Gideon Silverthorn John & Chris Spooler Julie Sullivan-Redmond

34 PULMONARY FIBROSIS FOUNDATION Paul & Kathryn Sullivan Kent Thomas UAW Local 551 Mary Ellen Supon Mildrene Thomasson UAW Local 1097 Benjamin Suratt, MD Joan Thompson Silvia Uchida Susan E. Loggans & Associates, P.C. Michelle Thompson David Ulm Earl & Charlotte Sutherland Earle & Bo Thompson Lauren Ulseth Merlin Swackhamer Geoff Thompson Michael & Janis Underwood Deena Swain Nathalie Thompson United Health Group (NJ) Edmund & Ruth Swanberg Anne Thomson United Technologies Corp., PAC Candie Sweaza Susie Thorngren United Way of Coastal Fairfield County Ruby Switzer Thomas Thottukadavil United Way of Metro Chicago Robert A. Sylvester, Sr. Joe Thrailkill Upper Montclair Country Club Robert & Marie Sylvia Thrivent Financial for Lutherans Foundation Robert Usdan Nancy Symeonoglou George Tiffany Ken Vale Sandy Syms James & Gayel Tillman Lynn Valenti Diane Szakonyi David & Mary Tilney Valley Electric Supply Corporation Paulett Taggart Robert & Verla Timmerman Harriett Van Bebber Joseph Taglairino Marcy Tixier Joel Van Boom Gary & Barb Takavitz Barbara Todd Kathlyn Van Brunt Neeta Takhar David & Marla Todd Sue Van de Walle Talco Marketing Earl & Bunny Toledo Craig & Lori Van Doren Shantaram Talegaonkar Cordell & Sue Tolstad Glenn Van Haitsma Karl Talpai Richard Tomasello Brian & Melissa VanBeveren Maija Talso Claire Tomlin, PhD Brian & Heather Vandenbroek Ashok Talwar Sheryl Tomlinson Paula Vanpool Samuel Tambyraja, MD John Torello Amy Vargo Mox Tan Patricia Tornatore Varty Family Claire Tardy Matthew Toro Meredith Vazquez Tau Zeta Tau Fraternity Jessica Torre Paul Velasco Martin Taube Jacqueline Torres-Santiago Kathryn Velasquez Christina Taylor Richard & Deborah Tozier Rodney & Geraldine Verblaauw R. Joe Taylor Doug Tracy James & Myrtle Verden Meg Taylor Travelers Community Connections Verizon Foundation Wayne Tegeder Matching Gift Program Dorothy Vernimb Mark Tepper Charles Travis Vernon Township High School, Sunshine Fund Brenda & Holli Terbush Aimee Trechock-Peters Alexander & Joan Vesselinovitch Texo Shelly Trefes Michael & Maria Vignola Saranya Thana & Family John T. Triandafilidis & Family Village at St. Ives Home Owners Association The ADP Foundation Fred & Diane Triquet Village of Lake Barrington The Arlan G. Martin Trust Tri-State Disposal, Inc. Maria Villano The Dorcas Fund William Trousdale Jonathan Vipond III The ESOP Association Danielle Trudeau Vivian Virden The Hallett Center TrustAtlantic Bank Vison Plus, Inc. The Joyce Foundation William Tucker Vitex, Inc. The Luzerne Foundation, William & Susan Tucknott Kathleen May Voigt Solid Cactus Cares Fund Dennis Tully Loretto Von Buehren The Malkin Fund, Inc. George & Sandy Tuman Susan Voss The Marino Center for Integrative Health Nuala Turley Doug Voss The Rose Hair Salon Jack Turner Wabash Valley Produce The Servants, Inc. Michael Turner Stanley Leroy Waddell The Stephenson National Bank and Trust Rochelle Turner Christine Wagner William & Gail Thedinga Dennis & Loretta Twohig Aj Wagner Carl Thelen Nancy Twombly Lewis Wagner J. Theogaraj, MD Katherine Tyner Marla Wagner Marshall & Roberta Thomanson David Tzou Andrew Wahle Jodi Thomas U.S. Bank Christina Wakefield & Amanda Holden

2012 ANNUAL REPORT 35 2012 SUPPORTERS

$100–$249 (continued) Lisa Wheeler Rand Wortman Walder, Hayden & Brogan, P.A. David Whitaker Ed & Sandi Wozniak Walder, Hayden & Brogan, P.A. Employees Judith White Richard Wray Stephen Walker Mary Ann White Lon & Deborah Wright Ray & Amy Walker Wendy White-Baxter Jake & Judy Wyatt Glenn Wallace Christina Whitford Dennis & Kathy Yaremchuk Chris Wallace Lee Whitley Samuel Yates Michael & Doris Walsh Sheila Whitman Yung & Jane Yeh Kitty Walstad Laverne Whitmire Lesley Yen Mark & Thanea Walter Family Megan Whiton Grace Yesmontas Steve Wampler Deborah Whittington Y. C. Yin Family Harvey Ward Peter & Bree Wilke Jim Yinger Marie Ward Brian Wilkinson Paul & Diane Yingling Michael Wargula W. Thomas & Minna Beth Wilkinson Stefanie Yosmanovich R. S. Warner John & Donna Willacker Bob & Julianne Young Washington Chinese Poetry Society William Tucker & Associates, Inc. Emma Young Cathy Wasson Charles Williams Jeanne Young Wa-Tal Properties, LLC Bob & Nelda Williams John & Tory Young Bill & Barbara Watson Jay & Gioia Williams Melody Young John & Alice Watson Margaret Williams Jennifer Youngblood Karen Weaber Patricia Williams Lisa Zachry Amy Weaver Keith Willis Donald Zadorozny & Family Anthony Weaver Lucille Willis Karen Zager Jeffrey Weber Willmes Tire & Auto Service, Inc. James Zawacki Lynne Weber Willowbrook Health Systems Barbara Zeckman Sue-Lon Webert Kevin Wilson Sean & Kimberly Zecman Wedel & Associates Financial Services, Inc. Douglas Wilson David Zehendner Herron & Cary Weems Susan Wilson James Zehendner Ann Wegmann Linda Winfree Seymour Ziegelman, MD & Loretta Ziegelman Paul Weinberg Wing Lung Tai Chi Chris Ziegler Evelyn Weingartner J. Karyl Winn Jay Zimmerman Natalie Weinstein David Winston Randy & Nabi Zimmerman Richard & Harriette Weinstein David Wise Pete & Jean Zuccaro Steve Weisbart Frederick & Daphne Witsell Lauren Zucker Janice Weisfeld Stuart Witt Benjamin Zuffranieri, Jr. Lola Weiss Dan & Katchen Wittner Robert Zuraw Nathan & Shelley Weiss Dion Wixted Steve Weiss Emily Woeste Weissman’s Theatrical Supplies, Inc. Celeste O’Malley Laurence Weithers Loretta Wojtalewicz Nancy Weitzel Richard Wolf Bradley Welch Byron Wolffing Danny & Sandra Welch Family Wollman, Gehrke & Solomon, PA Robert & Donna Weldon Wolverine Bank Chris Well Laurie Wonsil Stephanie Weller Andrea Woodard Anna Wells Mara Woodard Brad Wender Woodland Park Education Association Sybil Wendling Anne Woods Katherine Werner Joanne Woods Birgit Westphal Michael J. Woolf Wexco Incorporated Ronelle Woolston Leslie Whalin World Oil Company Edward Brandis & Robyn Wheatley Nick & Michelle Wormley James M. Wheeler Vicki Worthen

36 PULMONARY FIBROSIS FOUNDATION 2012 TEAM PFF

10th Annual Mossman Spirit Triathlon Michael Scott Fundraisers Saturday Sports for the PFF 1st Annual Alice Beal Memorial Walk for Pulmonary Fibrosis New York City Triathlon presented Scott Stiglitz and Pam Visser’s 1st Annual Jim Hodge 5K /10K Run for Pulmonary Fibrosis by RCN Bowling Party 1st Annual Teddy Bear Open for PFF Octoberfest Half Marathon and 10K Tastefully Simple Fundraiser 2012 ILD Strolls Orange Runners Club: Jingle Jog 2012 Team Breathe On Runs 2nd Annual Dave L. Smith Golf Tournament for IPF Pam Carroll Run the Rock ‘n Roll Half Marathon 2nd Annual George Lujan Memorial Softball Tournament PFF Jean’s Team Team PFF: Hike for Lung Health 2nd Annual John F. Tighe Walk for Pulmonary Fibrosis PFF Kuhn Family and Friends Walkers Team Mossman Event 2nd Annual Octoberfest Half Marathon PFF Mar’s SOB Squad The Bernice F. Dunlop 2nd Annual Pete DeVito Memorial Golf Outing PFF Robert Garcia’s Troops Memorial Golf Tournament 2nd Annual Ready. Set. Breathe! PFF Team Jeffery The Willacker Action Committee 2nd Annual Richard G. Hall Memorial Golf Tournament PFF Team Leanne Presents: Comedy for a Cause 2nd Annual Team Dan Walk-A-Thon PFF Team M&M Ultimate Frisbee (NY) 3rd Annual Christine C. Hack Walkathon PFF Walk with Pat Sunday Team – Jeff Don’t Want 3rd Annual Rouine Run for Pulmonary Fibrosis Pilot for a Cure No Subs 3rd Annual Willacker Family Pulmonary Fibrosis Golf Outing Reflections and Improvisations Recital Woodlawn Run for a Cause 4th Annual Garden State 5K Run/Walk Roy Fuhr Golf Outing Zumbathon 4th Annual Joseph S. Lore Memorial Golf Rugalech – David Leavitt 5th Annual Greg Chandler & Guy F. Solimano Memorial Golf Tournament 5th Annual Joanne’s Ride 5th Annual SAL-ABRATION 7th Annual Barbara A. Fiorillo Memorial Bike Run/Picnic A Night with Family and Friends at the Old Ballpark Pictured left to ACTS of LOVE Amherst Middle School Adirondack Chair Project right are Pete’s children and wife, Avon American Legion Post #145 Fish Fry Dinner Barbara Lynch Fundraiser Daniel, Nicholas, Boogie for Breath Susan, and Peter. BROADWAY BELTS for PFF! California Pizza Kitchen FUNdraising Event Carolyn Connor Fundraiser CELEBRATING THE LIFE OF PETE DEVITO Choral Stones of Stonecrest Concert Cocktails for a Cause The Pete DeVito Memorial Foundation and annual Golf Outing Colors for a Cause & Dinner was established to celebrate the life of Pete DeVito, Cruisin’ Toward a Cure for PF...Because Breathing Matters! who passed away from idiopathic pulmonary fibrosis on Donna Schwartz Memorial Walk for Pulmonary Fibrosis Draper and Kramer Jeans Day December 10, 2010, while also raising awareness and funds Eat, Drink & Be Greek! to support research for idiopathic pulmonary fibrosis. Elaine Grant Fundraiser Felice Santoro Pulmonary Fibrosis Foundation “Pete, my father, was a vibrant man that had such a great Three on Three Basketball Tournament impact on the lives of each and every person he met both Gale Davidson Memorial Shoot Go! St. Louis Half Marathon personally and professionally. His diagnosis with IPF and rapid HOCR Directors Challenge Mixed 2x Honoring John Wilson deterioration made us learn all about this life altering disease Hodgson Russ – Dress Down Day and adapt quickly. With the Pete DeVito Memorial Foundation John F. Adams Birthday Party Joie de breathe 2012 having the same goal as the PFF, it became evident that we Joseph DeGrazia Memorial Golf Outing have to work together to help find a treatment and hopefully Josh Ohlinger: Running for My Dad one day a cure for this devastating disease.” Kathleen Patrick Runs the “Go! St. Louis” Half Marathon Kathryn Paul Fundraisers The Foundation wishes to thank the DeVito Family for Kick Pulmonary Fibrosis’ Butt Manchester Marathon their generous support. For more information, please visit Master Brand Denim Day www.petedevitofoundation.org.

2012 ANNUAL REPORT 37 2012 IN-KIND SUPPORTERS

Amy Slate’s Amoray Dive Resort Hampton Inn & Suites Islamorada Renaissance Meadowlands Hotel An Apple A Day Catering Hotel Baker Rosebud Restaurants Arthur Murray Dance Center Hub 51 Roundabout Theatre Company August Hill Winery J. Hilburn Rovia Balena Chicago Jam Productions, Ltd. ROX City Grill Belle Vie Bridal Couture Jim Swon RPM Italian Berryville Vineyards Kane County Cougars Sam’s Club Best Buy Kathy & Chris Petrak Schaumburg Boomers Bliss Salon of Winnetka Kevin Brown, MD Shawnee Winery Blue Sky Vineyard Key Largo Conch House Shedd Aquarium Camp Tosebo Kickapoo Creek Winery, Inc. Sheraton Chicago Hotel & Towers Chateau Chantal Kiehl’s Sherrill Bodine Chicago Blackhawks Krista K Boutique Spirit Knob Winery Chicago Chocolate Tours Kryssage Wellness Sprinkles Cupcakes Chicago Cosmetic Surgery and Dermatology La Madia Suzy Halpin Photography Chicago Cubs Baseball Club, LLC Lenswork Studios The Book Stall at Chestnut Court Chicago River Canoe and Kayak Lifeline Theatre The Comix Gallery Chicago Sky Lynfred Winery The Hockadoo Company, LP Chicago White Sox Marriott Theatre-Lincolnshire The Late Late Show with Craig Ferguson Chicago Wolves Melrose Park Indoor Grand Prix The Signature Room at the 95th Clearwater Marine Aquarium Microsoft Tom Panoplos Cooper’s Hawk Winery & Restaurant NBC Universal Media, LLC Tracy & Anne-Marie Lee Dolphins Plus, Inc. Ocean Divers, Inc. Tyler & Sara Turnquist Douglas Valley Winery O’Hare Midway Limousine Service US 99.5 / WUSN-FM Elizabeth Arden Red Door Spa Outback Steakhouse Vera Bradley Ellen’s on Elm Pandora Jewelry Water Tower Place Village Toy Shop Fair Oaks Farms Panera Bread Windy City Thunderbolts Freedom Woods Paris Club Winnetka Golf Club Galena Cellars Vineyard & Winery Port Edward Restaurant Woodhouse Day Spa Gray’s Travel Management Pro Football Hall of Fame WXRT-FM Green Bay Cycles Randoons Zazu Salon and Day Spa

WALKING FOR JOHN F. TIGHE

“My father, John F. Tighe, passed away from IPF on December 21, 2010.

My father was a man of great kindness and always wanted to help others. We decided that the best way to honor our father/husband was to ‘do as he would do’ and that is to somehow help others that are suffering from this disease. My family has embarked on a mission to raise awareness and funds to help find a cure for this disease!

We found the Pulmonary Fibrosis Foundation (PFF) after my father’s passing The Tighe Family at the and with the help and support of the PFF we have been able to make our 2nd Annual John F. Tighe Walk for Pulmonary Fibrosis. mission possible!

We are currently planning our 3rd Annual John F. Tighe Walk for Pulmonary Fibrosis and we are hoping each year we will help make a difference!”

– Lisa Tighe, Team PFF

38 PULMONARY FIBROSIS FOUNDATION FINANCIAL SUMMARY

STATEMENT OF FINANCIAL POSITION STATEMENT OF ACTIVITIES

AUDITED NUMBERS AUDITED NUMBERS 2012 2011 Total Assets 3,724,437 3,489,197 Total Revenue 2012 2011 Total Liabilities 63,632 152,316 Unrestricted 2,256,757 2,135,741 Temporarily Restricted 398,144 97,274 Total Net Assets 3,660,805 3,336,881 2,654,901 2,233,015 Total Expenses 2,330,977 2,425,673 Loss on Disposal of Property and Equipment – (2,645 )

Change in Net Assets 323,924 (195,303 )

22% FUNDRAISING

67% PROGRAM SERVICES

11% MANAGEMENT AND GENERAL

11% OTHER REVENUES

ALLOCATION OF 2012 EXPENSES

AUDITED NUMBERS

Program Services by Category Advocacy 84,938 Physician and Patient Education 491,207 Research 501,331 89% PUBLIC SUPPORT Patient Outreach 277,328 Registry 154,280 Summit 39,452 SOURCES OF 2012 REVENUE Shop PFF 24,961 Public Support 2,352,135 89% Program Services Total 1,573,497 67% Other Revenues 302,766 11% Management and General 247,047 11% Fundraising 510,435 22% Total 2012 Revenue 2,654,901 100%

Total 2012 Expenses 2,330,979 100%

2012 ANNUAL REPORT 39 BOARD2012 SUPPORTERS MEMBERS MEDICAL ADVISORY BOARD STAFF

Daniel$$$ M. Rose, MD* Kevin K. Brown, MD* Daniel M. Rose, MD CEO AND CHAIRMAN OF THE BOARD CHAIRMAN CEO AND CHAIRMAN OF THE BOARD

Michael C. Henderson* David W. Kamp, MD* Patti Tuomey, EdD ) ACTING VICE CHAIRMAN OF THE BOARD MEDICAL DIRECTOR PRESIDENT AND CHIEF OPERATING OFFICER

Patti Tuomey, EdD* Jesse Roman, MD* Lisa Barker, CCRC, CPH microscope PRESIDENT AND CHIEF CHAIRMAN, RESEARCH ADVISORY COMMITTEE SENIOR DIRECTOR, PATIENT RELATIONS

OPERATING OFFICER Marvin I. Schwarz, MD AND MEDICAL AFFAIRS ),STILLFX ( Joseph Borus, Esq.* PAST CHAIRMAN Jennifer Bulandr oxygen SECRETARY Timothy S. Blackwell, MD* DIRECTOR, COMMUNITY EVENTS Thomas E. Hales* AND SOCIAL MEDIA Jeffrey T. Chapman, MD TREASURER Daeshawna Cook Harold R. Collard, MD* COORDINATOR, DEVELOPMENT

Ritu S. Baral* ),HADI DJUNAEDI ( Rany Condos, MD Mayra Diaz Daniel Beren, Esq. (EMERITUS)

Gregory P. Cosgrove, MD* SENIOR ACCOUNTANT, FINANCE testtubes Kevin K. Brown, MD Aryeh Fischer, MD Zoë Dirks Jennifer A. Galvin, MD Christine Kim Garcia, MD, PhD ASSOCIATE VICE PRESIDENT, Julie Willis O’Connor BUDGET AND PLANNING 13: ALEX011973 ( 13:ALEX011973

Andreas Günther, MD* p Susan L. Rattner, MD Eirill Falck ); Susan S. Jacobs, RN, MS John Ryan GIFT PROCESSING SPECIALIST, keyboard Naftali Kaminski, MD* DEVELOPMENT Carl Salzano Joseph Lasky, MD* Courtney Firak Dave Steffy Andrew H. Limper, MD* COORDINATOR, SUPPORT SERVICES Stephen A. Wald, PhD Dolly Kervitsky, RCP, CCRC ),LEUNGCHOPAN ( Kathleen O. Lindell, PhD, RN*

Matthew C. Williams VICE PRESIDENT, PATIENT RELATIONS hands James E. Loyd, MD* AND MEDICAL AFFAIRS *EXECUTIVE COMMITTEE David A. Lynch, MD* Jennifer Mefford Fernando J. Martinez, MD, MS* LOGISTICS SPECIALIST, DEVELOPMENT

A. Bruce Montgomery, MD Amanda B. Miller ),LUCKY BUSINESS ( x-ray Imre Noth, MD MANAGER, DEVELOPMENT Gretchen Reyes Ralph J. Panos, MD COORDINATOR, FINANCIAL OPERATIONS Ganesh Raghu, MD Cara Schillinger

Luca Richeldi, MD, PhD* PIOTR_PABIJAN p 7: (

ASSOCIATE VICE PRESIDENT, );

Glenn D. Rosen, MD* MARKETING AND COMMUNICATIONS globe

David A. Schwartz, MD* Andrea Smith

Moisés Selman, MD MANAGER, MARKETING Scott Staszak 6:SENAI AKSOY (

Patricia J. Sime, MD* p CHIEF FINANCIAL OFFICER Charlie Strange III, MD* AND ASSOCIATE VICE PRESIDENT, Robert Strieter, MD INFORMATION TECHNOLOGY

Jeffrey James Swigris, DO, MS* Rodney J. Watt VICE PRESIDENT, DEVELOPMENT Janet Talbert, MS, CGC SHUTTERSTOCK.COM /

*RESEARCH ADVISORY COMMITTEE IMAGES: BOCKOS DESIGN, INC. :

40 PULMONARY FIBROSIS FOUNDATION DESIGN The mission of the Pulmonary Fibrosis Foundation is to help find a cure for idiopathic pulmonary fibrosis, advocate for the pulmonary fibrosis community, promote disease awareness, and provide a compassionate environment for patients and their families. 230 EAST OHIO STREET SUITE 304 CHICAGO, ILLINOIS 60611–3201 www.pulmonaryfibrosis.org